update on "waiting"...
DS is a happy 23.4 lbs. I am so excited...new clothes are acctually needed for the first time in the better part of 10 months. He is GROWING!!!! His bile sample tests came back positive for low pancreatic enzymes. He has upped his enzymes again and that is helping with the break through poops. We have started some supplements as well. As for the genetic test ...I am having a hard time finding out which test he got. The nurse I talked to on friday said it listed 30 markers it tested for, but was unable to tell me the exact name of the test. We go back in on the 1st and hopefully I can get a print out when I go.
I was interested if anyone else on this board had just the pancreatic issues and no CF? our doctor says that it is very rare but possible. I can't find anything about low pancreatic function and infants that is not CF or SDS. I would love to say that we might be out of the woods but have a feeling that it is too early too tell. THX!! ~k