Re: Just diagnosed two months ago, need help, please!!!
Hello Martha and welcome to the boards, sorry to hear about what you're going through. It is very tough in the begining especially how RSD can turn your whole world upside down in a matter of no time. Just because you don't have the sensitivity issues and swelling doesn't mean you don't have it. All of us have different symptoms, I don't have a whole lot of swelling or color changes like some do. I can sympathize with you on the issue of your arm and shoulder becoming frozen. My left arm is locked in the position where my left hand touches my left shoulder and the only time I can extend it is to put my clothes on. My shoulder and arm are like this due to both RSD and Cervical Dystonia which is severe and uncontrolable musles spasms of the neck.
I lose the use of my left arm 6 yrs ago and I only have about 30% usage of my right arm as well. It was tough in the begining and I did alot of crying over the fact that I had lost the use of it. I suffered through alot of muscles spasms of my neck and shoulder and sharp pain running down my arm. So my heart goes out to you and hopefully you will find a good doctor who will help you. Especially since you're in the first stages of the horrible condition. As I said before I know what you're going through but evidently it will get better. After suffering with Cervical Dystonia for 4 yrs when the 5 yr rolled around, I finally quit having those unexpected muscles spasms. The bad thing is all the muscles on both sides of my neck are hard as bricks and my left shoulder is higher than the other one. Also it looks as though the top of shoulder is pulled to the right side and kinda sticks out front. So I wish you the best and don't give up hope.
RSD (Reflex Sympathetic Dystropy)
Cervical Dsytonia- severe muscle spasms in the neck