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Old 10-19-2009, 02:52 AM   #9
BluBird BluBird is offline
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Join Date: Jan 2009
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Re: Help - Just diagnosed with Dermatomyositis

Hi,

Well, it's been an adventure. things are going okay. I've changed Dr's a few times since I posted. It turns out the Dr. I was seeing, wasn't treating me aggressively enough - I wound up being put on 60mg prednisone in June and have been tapering down from that. I'm currently at 20 mg and seem to be doing very well. Once I was at 60mg., the rashes started clearing immediately...

I've been told that people with DM can have normal CPK levels and the disease still be active...(when I couldn't lift my arms, my CPK was only 239) - If that's true, how do they/you know the disease is active????

Thanks,

 
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