Re: Help - Just diagnosed with Dermatomyositis
Well, it's been an adventure. things are going okay. I've changed Dr's a few times since I posted. It turns out the Dr. I was seeing, wasn't treating me aggressively enough - I wound up being put on 60mg prednisone in June and have been tapering down from that. I'm currently at 20 mg and seem to be doing very well. Once I was at 60mg., the rashes started clearing immediately...
I've been told that people with DM can have normal CPK levels and the disease still be active...(when I couldn't lift my arms, my CPK was only 239) - If that's true, how do they/you know the disease is active????