Re: Does it really matter what is wrong?
If it were just me and I had no one else to worry about, then I really could care less what I have. I had some of the same symptoms you have with a slightly elevated CK level but very little muscle problems except in my hips. Was diagnosed with what they thought was a mild form of LGMD....this was 20 years ago. Now I have been married for 16 years and have 3 children and find out I might have FSH MD instead. So, I go from not caring to having 3 children who may have a 50% of getting the same thing. Totally different when your children are now involved.
If it's just you, you don't have any children and you don't ever plan on having children, then yeah, who cares. If there is any part of you that wants to have children someday, then find out what you have for them.