I was diagnosed with orbital myositis in February 2010. I am still on a high dosage of steroids and struggling to lower the dosage without flaring up. I have now been put on Mycophenolate Mofetil (immune suppressant) to help me come off the steroids. I am already so frustrated
and I have had it less than 6 months! I have found little information on this condition and I am really struggling with the side effects of the medicines.
Like a friend commented: I have a junky eye that might need to go to rehab
Please let me know how you are getting on even if just to let off some steam.