Re: Mother with ALS
My question is the same as yours only my husband has bulbar onset and went directly from diagnosis to bipap. In 4 weeks his deterioration is just astonishing. It is my understanding that most patients will go into a coma because of the carbon dioxide that can no longer escape their lungs and will die peacefully. Other's will die from pneumonia. Most patients are afraid of choking to death but this doesn't happen. Don't know if I really believe this. My question is when you ask how much time and the dr. says we just don't know then how do you know when you become eligible for hospice?