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Old 05-24-2011, 04:27 PM   #8
jayme13 jayme13 is offline
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Join Date: May 2011
Location: Ontario Canada
Posts: 16
jayme13 HB User
Re: Chronic Progressive External Ophthalmoplegia (CPEO)

Hi There, Hope you had a good day!!! Mine was good! I called to see if the specialist had heard from the specialist who is doing the muscle biop. Nothing yet. Hopefully soon.

My mom and sister don't want to think I have this cpeo, yet 2 specialists say looks like. They(family) are both wanting conformation when I have the muscle biop. done. I was told by two nuroligists and have read on the net that this can cause hearing loss. Everything is just so rare.

Are you married single?? Do you have support outside of here? How did you find the other people with cpeo?

Well I am going to go and eat some dinner.

Oh do you get a lot of headaches? I do...some mornings I wake and feel like I am going to be sick to my stomach. It takes hours for it to finally pass. Needless to say when I wake like that i miss a day of work.

Love ya back there cpeo sister!!

Last edited by moderator2; 08-24-2011 at 09:01 PM. Reason: please do not post a commercial website

 
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