Re: Chronic Progressive External Ophthalmoplegia (CPEO)
hi my friend, I'm so sorry. You are not alone. I wish we could all get together and have a a support group gathering. None of my family, mom or dad's side, great grandparents and beyond have had this. Mine was apparently a rare occurrence. Along with droopy eye, (mainly right eye), also have chronic dry eye and now balance issue due to weakness of my feet. I went to Hopkins and basically the diagnosed me and said i have a while to wait to get frontalis sling. They said wait till your eye almost closes. Computer bothers me a lot, so i have to get off this thing.