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Old 08-14-2011, 04:00 PM   #19
manybikes manybikes is offline
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Re: Bilateral hypofunction

Quote:
Originally Posted by uga View Post
Thanks manybikes!

Things are tough, but I try to stay as active as possible, I wil not let this ruin my life. I am finding that it is important to push yourself, but dont push yourself over the edge.

Manybikes:
I took a leave from work to let things settle down a bit but want to go back to work asap, I drive 50 miles each way on the highway and eight now I am still unable to drive. Fast moving objects give me a difficult time and throw me in a sort of spin.

Manybikes:
how ling was it until you felt comfortable behind the wheel of a car?
I am getting the feeling the first year or two are tough with many peaks and valleys. The oscilopsia is my main distraction.

Many bikes:
how long was it unti you could read effectively without the brainfog ect....?
I still need an assistive device when going o busy places such as Wal Mart, Home depot, or sporting events---- I bring a cane or if it is reallly busy have used a wheelchair, feel bad about it but from a safety standpoint I have to.

Manybikes:

do you still struggle with concentration lapses?

Thank you a million, you are my hero and someone I always keep in mind on the bad days, knowing there us a lght at the end of the tunnel.

I just wish I was more patient!
Manybikes, maybe having no function is better than having bad function in both ears, I don't know if I could live with vertigo from some of te stories I read maybe I am fortunate in some ways!

Talk soon my friend----- I consider you a role model.

Sincerely,
Uga
Hey Uga

Yep, the first year can really be tough to deal with but take heart in the fact that this is as bad as it gets, going forward it gets better, much better.

It took about two years before I felt confident driving in all conditions. Where I live in Canada winter presented a challenge. Imagine trying to drive on a freeway in a blinding snow storm...not easy. I started out by driving short distances in areas with very little traffic. I would always have my Wife with me just in case I needed help. We would often go for drives in the country away from city traffic. There were many times where I would have to pull over and have my wife take over driving as I would become exhausted and could not handle it. Driving on busy freeways and driving at night are the two hardest to adapt to. I used to navigate around the city initially by avoiding the freeways and using side streets, this way it gives you plenty of chances to pull over if you have to and the speeds are much slower....on a freeway this is not an option. It always took longer to get where I wanted to go but it was much safer.
I know what you mean about the oscillopsia....it is down right cruel! This does get much better Uga, your brain needs time to adapt.

Never be ashamed about having to use a cane when you are in busy public places, it's better than falling down. You will eventually no longer need the assistive devices but it takes a while.

I still do get the odd concentration lapse, they are very brief. I have no trouble reading a magazine or reading articles on the computer. I used to have a great deal of trouble reading, I would sometimes have to put my elbows on the table and hold my head so I could see the words. I have no problems now in that regard.

You are doing the right things Uga, it takes persistence, patience and a lot of hard work.

Thank you for the many kind words Uga.
I hope that my advice or encouragement helps you somehow. Keep me posted on your progress.

Cheers
Manybikes

Last edited by manybikes; 08-14-2011 at 04:05 PM.