| | Re: Chronic Progressive External Ophthalmoplegia (CPEO)
This is my first time posting on this site.. I have SLE and post alot on their site.. We just found out that my husband has CPEO..through a muscle biopsy that he had done.. We are clueless as to what is going on.. He started having hearing loss a few years ago and his eyes have always been a little droopy, but we never thought anything about it..Well, long story short: he had a really bad car accident in May and spent about 3 days in the trauma unit and fractured all the bones in his face, when we seen the eye dr on the trauma team, the first thing he ask us was did he have CPEO? because he woke up from the wreck with double vision (that he still has) and he could not move his eyes from one side to the other..We have seen about 5 specilist by now and go back to his eye specialist tomorrow.. they are even talking about putting a pacemaker in!!! Can someone who has had this awhile PLEASE help me understand what we are in for and if we are going in the right direction?
Thanks to anyone who can help...