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Old 09-09-2011, 03:40 PM   #1
vladybird vladybird is offline
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Join Date: Sep 2011
Location: illinois
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Question hyperparathyroidism with low PTH?

My Symptoms...

"Mild" Hypercalcemia:
Calcium 9.1 - 10.7
Ionized Calcium 5.3 (borderline)

Extreme Hypercalciuria:
Calcium in 400's after 48 hr urine collection

Ultrasound:
Could not detect a tumor, which she said didn't mean I didn't have one

Simple Bone Density Screen:
Above average+

PTH only 13!
Vitamin D 36 (that's on the low side, right)?
Phosphorus 3.8
Kidney Stones = at least 20 calcium in past few years. I also have a duplicated collecting system, to complicate matters.
Headaches (all day everyday)
Nausea (have lost 25 lbs since Jan)
Memory issues
Sleep issues
Depression
Frequent urination
Frequent hospitalization
Never feel well
Weak immune system
Can barely make it through the work day (after 3 pm)

It SOUNDS to all my doctors just like hyperparathyroidism, but the PTH is so low. My endo did another set of tests and I am still waiting on the results, but the waiting is TORTURE.

Just wondering if anyone else has heard of HPT with that low of PTH level. I am only 35 and it's not cancer, milk-alkalai syndrome, or sarcoid.

So tired of bouncing around from urology to gynecology to endocrinology to reproductive endocrinology, to GI doctors, etc. It was a brand new integrative medicine MD that suggested we rule out HPT and sent me to an endocrinologist (a great one). This after 6 yrs of suffering with these symptoms no one thought to rule it out!

Anyway...rambling...anyone else have low PTH (teens) yet ALL other symptoms?

If my PTH comes back in the 20's they are going to do surgery with all my symptoms, but if it is in the teens, then no. I swear I might pay out of pocket for elective surgery if that is the case.

Any insights greatly appreciated!

 
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