Hi Sparkle 16, im from the UK and was diagnosed for primary sjogrens 10 years ago, Ive not really had any help from the NHS, they just put me on the anti malaria drug and it did what you are describing, migranes, so I came off it as it made me see things in different colours also. They told me to go back on it but I really didnt want to risk losing my eyesight. So ive really just plodded on for 10 years, I now own a successfull business and try my best on the days I feel low, and do brilliantly on the days I feel great. Its hard coping with the aches pains and fatigue, but only my closest friends know and I dont think anyone elses suspects it!
Hope things work out great for you and if youd like a chat feel free to msg. Sarah