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Old 10-07-2011, 11:02 PM   #3
ventcrew ventcrew is offline
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Join Date: Apr 2004
Location: Allenton, Michigan
Posts: 193
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Re: Surgery for Chiari - Need Input!!!!!

PinkEarthMama

Thank you so much for responding to me. I am so glad that your daughter is doing so well. It makes me smile. Mine is just 5mm but it is crowding my spinal cord and compressing my brain stem. My symptoms are constant head pressure, intracranial hypertension, headache, numbness and tingling of head and hands. I sometimes have burning, weakness and pain all over my upper body. I sometimes can't get my words out. My reflexes are hyper and my evoked potentials and brain response test came back abnormal. I do manage to get by and even work part time. Only 3 hrs a day. I am trying to get disability. My husbands insurance is switching and will not cover my surgery in Wisconsin. I have decided instead of rushing into surgery I would wait a while and see what happens. If it gets worse I might find a doctor here in Michigan that does the decompression but in the mean time I will deal with it. Thanks again!!
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Karen