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Old 11-03-2011, 12:18 PM   #1
maksmom2a maksmom2a is offline
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Join Date: Nov 2011
Location: somewhere, tn, us
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Unhappy Severe Osteoporosis at 29?

Thanks in advance for any help/advice or to anyone who just simply takes the time to read this :-). I'm 29 yrs old, female and have been diagnosed with severe osteoporosis (t-score is -3.2). I have had pain in my bones and joints for almost 4 yrs now. Initially I had pain in my left groin area (thought I had just pulled a muscle), but when the pain didn't improve after a few weeks I decided to go to the doctor. I was diagnosed with adductor tendinitis given anti-inflammatory meds and told to come back if symptoms didn't improve. To make this as short as possible, I went back several times over the next few yrs. My pain went from my groin area to my hip to both hips to my lower back to eventually every joint/bone in my body hurt. About 2 yrs ago I had to start using a walking cane just to get around. At the beginning of this yr, I finally found a doc that would listen to me. I was sent for an MRI. It showed that I had a fracture in my left hip and a smaller fracture in my right hip. I was referred to a bone and back specialist in my area. I had to explain that I didn't fall, didn't have a vehicle accident, wasn't in an abusive relationship, etc. and that i had no clue how i ended up with two fractures, surgery was scheduled. I also had a Dexa scan done around this time. I had 3 small screws placed in my left hip. At the 6 wk check up, and after having an x-ray, it was decided that i needed another surgery (the screws would come out and a rod would instead be placed to help the fracture heal) since there was NO improvement in the fracture. While I'm in the hospital for the second surgery, I learned the results of the Dexa scan. (The doc didn't even bother to look at the results after he ordered it before i even had the first surgery, a specialist in the hospital is who told me after i kept having to insist that i did NOT know how i got the fracture in the first place). Anyways to sum it all up. I had bloodwork done a few weeks later Here's the results
Vitamin D lower than 8 (i knew about this prior to the second surgery)
PTH 83.2
Calcium 9.4
Phosphorous 1.9
ALK (?) 34%
I was diagnosed with secondary hyperparathyroidism and am scheduled to see an endocrinologist in January. As of today, I am still in crippling pain. I have to use a walker to get around. I fear that I will soon be bedridden. I have 2 small kids and that's been the most difficult thing for me through all of this. Anyone else been in my boat. Anyone know anything about hyperparathyroidism I've read EVERYTHING on parathyroid.com and while all of my symptoms seem to be related to that (esp. already suffering from a fracture by severe osteoporosis at my age), i'm still not sure. I don't want to get my hopes up, because everytime I've done that in the past, I've just been let down. Thanks again to anyone who read this and maybe has some insight.

 
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