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Old 12-09-2011, 09:26 PM   #2
giamarie12 giamarie12 is offline
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Join Date: Dec 2011
Location: Philadelphia, PA USA
Posts: 21
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Re: Sjogren's? What do you think?

Sounds very familiar. You are in the diagnosis Merry Go Round. The more doctors involved the absolute worse it gets. Too many ego's and opinions to deal with. This is a tricky disease like MS or Lupus. It took me decades of suffering. Probably not what you wanted to hear. Luckily you are young and believe me the medical profession has advanced in leaps and bounds since the 1980's when I first started having problems. Doctors pretty much have stopped screaming at their female patients and are a little more willing to listen to their patients. Speaking of patience that is unfortunately what you will need until you are lucky enough to find the best of the best physicians. Who do the bizarre tests and are not afraid to spend your insurance companies money. Ask for an Antiphospholipid Antibody. Factor 2 + 5. Just for your own knowledge to rule out these potential issues. I wish you luck getting them. Like I said. Doctors do not generally like to be told what to do so tread lightly. They seem to get upset because they spent all of their parents money getting their Doctorate. I was lucky enough to have the best rheumatologist but it took 3 years for tests to turn positive. As he said the disease evolves, I believe the lab who does the blood work evolves. I used a lab he suggested that I never used before always used one specific lab and always wondered if they were not just pushing through blood work. They were sued and lost due to a very severe case of not properly testing blood work. Scarey is nt it. But I do wonder. I wish you luck and a speedy, uncomplicated diagnosis. Take care. Try to be patient as these are better medical times to be diagnosed.

 
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