Re: Need encouragement and hope
All the experts say it is too early to tell right now. PT said he could be confined to a power chair and need feeding tubes or be a walker and highly independent. But all we can do now is work on therapy.
Son goes once a week to see PT and about 20min of interaction before he is out of stamina. We see OT once a month and work him as much as we can at home using their detailed regimen.
Waiting to hear back about early intervention help as well.
It is so early we have no idea what to expect. When did other kids with spastic quad start reaching/grabbing frequently? When did floppy necks improve? When did reflexes integrate and disappear etc.
We feel like we are lost w/o map