Originally Posted by Johnismybrother
My brother has been treated with Lyme disease, heavy metals and the dr. Are diagnosing with ALS. The other diseases mimic ALS, but they won't look at those. We are at UCLA. Has anyone had this experience? If so, please advise
I noticed it has been several months since you posted. My brother was diagnosed in 2007 with ALS. He went to his doctor and the doctor said he suspected ALS but to be sure referred him to a specialist in Houston. The specialist confrimed the orginal doctors thoughts. Of course our family immediately jumped on line reading everthing about it. We all thought it has to be Lyme's disease. They live in the country, lots of trees and animals. Nope the doctors were sure! Now here we are almost exactly 5 years later. He progressed exactly the way they said he would. He is now close to the end of his journey. I've seen a lot, learned a lot and wouldn't wish this on anyone but my brother made it so hard on himself. He refused so many things. Since his diagnosis he hasn't step foot into a doctor's office. He never went back. Hospice stepped in a couple years ago but he only lets them do limited things to help. They basically come once a week and check his lungs and other vitals.
Good luck to you and let me know how it turns out.