Re: Not sure... suggestions? Maybe RA?
Hi 6kidz and let me apologize for being so late in getting back to you. The day you posted, I was having my 3rd spine surgery for OA. Just got my staples out yesterday so sitting no longer feels like I'm on a pin cushion.
The morning stiffness in bi-lateral joints is a pretty common pattern for RA. Doesn't mean you can't have another form or even 2 forms or have RSD with it. I've had severe OA since my late teens and this past surgery was my 23rd for OA. I'm 60. Had both knees replaced at 47.....I get it. Then I got severe RA 7 years ago and 2 years ago got Ra in both replaced knees......just to add insult to injury. and then added secondary Sjogrens when my eyes went nuts. It just never ends.
But I am what they call sero-negative RA. Not only sero-negative but they recently have diagnosed me with a rare form of Ra that hits the soft tissues worse than the joints as all my tendons have calcium deposits in them and I am dislocating joints from lax tendons. But when they talk about sero-negative, that doesn't mean no positive blood work. Most with RA have a high sed rate and CRP. You may have a high or low white blood cell count. Platelets go up too from RA. And you generally become anemic...an anemia that doesn't respond to iron.
You need to find a good and patient rheumatoloigst who will test and observe and watch and wait...it takes time but sooner or later, whatever it is, will show it's true face.....unless it's your mom.
In 1900, there were 2 kinds of arthritis...OA and Ra. By 2000, we had 100 types of arthritis and it is predicted they will have identified 200 types by 2050. Sooner or later they will find out what your mom has and who knows....maybe it will be named after her. A sad leqacy for sure but she might help many in the years to come.
So please find a good doc(shop if you have to) but find someone who will LISTEN.
Let me know what happens..................Jenny