Thread: Dystonia: Help
View Single Post
Old 04-23-2012, 04:10 PM   #24
MOMWITHDYSTONIA MOMWITHDYSTONIA is offline
Junior Member
(female)
 
Join Date: Feb 2012
Location: TOLEDO,OH USA
Posts: 20
MOMWITHDYSTONIA HB User
Re: Dystonia: Help

Ohhhh myyyy goodness! Wow soo sorry to hear that..sounds like you have the same kind of luck mom and i do...if it werent for bad luck we wouldnt have any at all most of the time. So the spinal tap, why did they make you have that? Are they thinking your rapid onset isnt genetic after all?
Thats one thing they never did to mom because they were convinced hers was due to a mental problem and the new dr never felt it necessary since her condition was definately caused or aggrivated (if hers is genetic) by the medicine. I hope you are well very soon, soo sorry to hear your feeling so bad.

Have a good day lee
amanda