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Old 06-17-2012, 02:46 PM   #1
tracyabs tracyabs is offline
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Join Date: Jun 2012
Location: Markfield
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20 months after severe pneumonia

Hello everyone

My husband has been ill for 20 months now following a severe mycoplasma pneumonia, large pneumothorax and subsequent atelectasis (all affecting the left lobe). Prior to this he was extremely fit and healthy. He has never smoked, he trained hard at the gym 5 times each week.

Now, at 32 years of age, my husband is in considerable discomfort every day and cannot function enough to return to work or carry normal day to day activities.He suffers recurrent chest infections due to the chronic atelectasis and is constantly fatigued. His breathing is very noisy, consisting of a harsh sound when breathing more deeply, following exertion of when coughing.

Cardiopulmonary Exercise Test in October 2011:
Max Heart rate 93%, Max Ventilation 83%, Max Oxygen uptake 69%, Oxygen pulse at maximum exercise 14.1 ml/b/min

Though results from pulmonary function tests suggest that he should be able to operate day to day, the reality is very different and we are looking for an open minded doctor who is willing to listen to his experience and symptoms, work out what is wrong and then help him to make a recovery.

Some emphasis has been placed on trying to apportion symptoms to dysfunctional breathing, anxiety and more recently weight gain but the physiological deterioration is evidenced by medical tests. Lobectomy of the left upper lobe has been considered but a rigid bronchoscopy (December 2011) with lavage was favoured over this in an attempt to open up the left upper lobe but the atelectasis remains.

Can anyone suggest a good doctor or has anyone experienced anything similar? My husband's character has been attacked throughout all of this as though he is making this up when this is not the case. He has been anxious on occasions - but surely not being able to breath would make anyone feel anxious.

Thanks in advance.

T