Thank you so much, ladies. I've felt for both of you, it's such a horrible disease. "Broken-hearted" is the right word to use. I hope, hope, hope, IV Mom that your daughter doesn't have RSD. It doesn't really sound like it to me but I'm really a newbie. Fluttersby, I hope you are helped too. Sigh.
On the positive side, I just took dd to a new doctor, MD plus naturopath or something. She was still in remission than and he was very confident that he could help her. This is encouraging. Course, the PM docs were confident too (last year) and I don't think they really knew what they were doing,
. So we'll see.
Also, I've been worrying that she would need a lot of hyperbaric dives again (she had 40 before) and I didn't know how in the world we would pull that off, but after talking to our HBOT technician, she may only need a few. This is really good news, at $100 a dive.
IV Mom, I'm convinced HBOT is the best possible treatment right now for RSD. You should definitely check into it, if your dd has RSD. Fluttersby, you might want to look into too. When dd started HBOT, in April, her pain was cut in half after 5 dives, and after 10 it was gone completely. You both need to check it out. It's expensive, but compared to all the blocks and meds and stimulators, it's cheap!! Not paid for by insurance though. Too bad.
Thanks again, ladies. I'm thinking and praying for both of you.