Originally Posted by stoneyburke
Just wanted to wish you good luck with your appointment tomorrow. Hope you get good news and get your surgery scheduled soon (if you are anything like me, you just want to get it over with!) Please let me know how you turn out and I will do the same. Things have changed a little for me - my husband found out he had a cyst between his 4th & 5th vertebrae and is scheduled for surgery on Nov 9th so will probably have to delay my surgery until the beginning of the year. Will just have to wait and see what the dr says. Anyway have a safe trip and good luck!
Hope your appointment went better than mine. I had to see a resident first and was beginning to think I wouldn't get past him to even see the doctor. Both seemed pretty freaked out about having to deal with my clotting disorder as part of the mix since I take blood thinners and am at risk when I have to be off them for surgeries and such. The doctor told me the PCNL procedure would be just as risky for bleeding, if not more so, than the Lithotripsy. He thought it would be safer for me to have a procedure where they go up through the bladder because there would be no incisions, but said it would require at least two or more surgeries to get the whole stone. He totally ignored the fact that there are alternate meds I can take while off my blood thinners to lessen the risk. I reminded him that I live three hours away and that it just wasn't possible to expect my family members to take off work multiple times to get me to and from the hospital for who knows how many surgeries and procedures. Then he decided that, since I was not having ongoing infections or major pain, there really was no reason to do anything at all just now! Like it's not going to keep getting larger while I'm ignoring it??? So he finally said I should contact a thrombosis specialist I saw last year, tell her what my options are and ask her what she recommends and have her write out a list, making it "stupid dumb" easy to follow, that breaks down day by day exactly how and when they should stop my blood thinners, what replacement meds to give, how much and when. Really?? I was on my way home within 45 minutes of my appointment time thoroughly frustrated. So, at this point, I have no idea what I'll end up having or not having, and when.
So, how did it go for you? Better, I hope.