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Old 11-12-2012, 02:54 AM   #1
jhall387 jhall387 is offline
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Join Date: Apr 2012
Location: CA, USA
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jhall387 HB User
Celiac Disease... and more problems? Any guidance...

Hello All!
Well to start it off when I was 18 male (now 21, 22 in January) I start having breathing problems and burping issues. It was very random symptoms that hit me one night when I was going to bed. I ended up going into the E.R and they said everything was fine, but I had a sinus infection...

So basically it never went away and I started to develop intense stomach pains. So now I felt short of breath and my stomach was always in pain.

In late 2009 I had an EGD and Biopsy after a bloodtest that showed I had celiac disease and confirmed that I did have celiac disease. I started the gluten free diet and the stomach pain for the most part got better, but my breathing and burping was still there.

Over the years it seems that I keep increasing in symptoms slowly while still being on a gluten free diet and trying to take care of myself.

I now have soar throat 24/7. It is always red and it always look like I have goop in the back of my throat, I get heart burn, stomache pains, and problem eating food sometimes.

Till today I've had 2 more EGDs, a Hida Scan, Esophogram, Upper GI w/ lower bowel follow through, CT scan of the abdomen and probably more I can't think of.

None of these tests showed any sign of problems or Acid Reflux, yet I feel like I have all the symptoms.

I'm on 150mg of zantac 2x a day and right now on 40mg of protonix x1 a day.

My main issue now is the soar throat, and my tongue gets a coating on it, and I get these like soars, where it looks like a layer of skin dissapears on my tongue and its really red and soar.

Also I had a dexa scan that said I have osteoporosis....

I don't know what to do, whats helping me, whats not...

My villa is damaged, I already can't absorb nutrients properly, yet I'm also on acid blockers which block acid from letting you digest food properly, yet it seems like acid blockers are the only thing that help me a little, yet there has been no proof of acid reflux or findings.

What do I do...I feel like i'm just slowly getting sicker and having problems and I hate it. Did anyone go through anything like this? Any guidance? Any help would be appreciated!

 
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