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Old 11-21-2012, 01:53 PM   #12
Gabriel Gabriel is offline
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Join Date: Jul 2007
Location: charlotte, nc, usa
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Re: Another big step down for Mom...

The follow up... it is not her ability to swallow but her ability to use her tongue and mouth. It's a brain disconnect... typical in this disease. She is chewing her food well but it is then being pocketed in her cheeks. If there is too much in her mouth she just holds it. But if I feed her thickened liquids, soup, or ice cream with a spoon slowly, she will get it down. So an order for puree food is on the way. I did find out today that she has lost another 6 pounds. That is 11 pounds in 2 months. She is down to 91 pounds. Yet she had a smile on her face today and was content. Except when somebody touched her ear. That got a stern look and the word OUCH!

Thank you all for your thoughts and good wishes... you are the best It is nice to be able to come somewhere when I get home and type to friends that understand....

Love, deb

 
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