Re: Chiara Malformation Husband SUFFERING TERRIBLY NEED HELP PLEASE
Did his surgeon respond yet? I would be concerned he has developed hydrocephalus, a significant rise in cerebral spinal fluid pressure. If he is vomiting, severe headaches, visual disturbance? he likely has increased intracranial pressure and may need a shunt placed to drain the CSF if it is blocked. Please get your husband to a neurosurgeon with the MRI (is that since these symptoms recurred?) or to an emergency department in a hospital big enough to have top notch neurosurgeons, even if you have to travel to a bigger city. If the CSF flow is blocked, this is very serious and needs to be fixed ASAP. If he shows up in an ER, they will have to take care of him NOW, where with a referral, you could have a long wait for an appointment. He needs relief and immediate care!