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Old 11-30-2012, 11:36 PM   #4
anna2012 anna2012 is offline
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Join Date: Nov 2012
Location: Washington, DC
Posts: 11
anna2012 HB User
Re: Chiara Malformation Husband SUFFERING TERRIBLY NEED HELP PLEASE

I am so sorry to hear about your husband I think it was a good first step to send the MRI to the original surgeon. Maybe you can take the MRI to a neurosurgeon in your area- someone who knows what to look for.

You mentioned your husband is 6'4"...has he ever been screened for Marfan Syndrome or other connective tissue disorders? Just a thought.