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Old 01-07-2013, 06:40 AM   #3
hayguy hayguy is offline
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Join Date: Jan 2013
Location: Colorado
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Re: Addisons disease and headaches

Were you ever on just hydrocortisone and no florinef? There are a few people who have problems with florinef, some eventually tolerate it, some don't.

I was diagnosed with Addisons in May 2012. The doctors started treating me with straight hydrocortisone, 40 mg daily, split dose, and no florinef. And I felt pretty good other than having a lot of fatigue at the end of the day.

About a month later I was sent to an endocrinologist who put me on a lower dose of 20 mg hydrocortisone and started me on florinef. I started feeling lousy and had headaches. After about five days of that I couldn't stand it anymore, quit the florinef and went back to 40 mg of hydro.

A few months later I got a new endocrinologist who had me lower my hydrocortisone gradually to 30 mg, at which I felt alright. Then she started me on florinef again as my mineral balance was getting a little out of range, sodium was getting too low and potassium too high.

Because of my previous experience with florinef, I decided to take only a half dose per day. It did put my mineral balance okay but after two weeks of that I couldn't stand the headaches and feeling out of sorts anymore and quit the florinef again. My endo had me increase the hydro back to 40 mg, being that an elevated dose of hydo helps maintain mineral balance in the abscence of florinef, which it is doing.

Florief is not the same molecule as the aldosterone which it is meant to replace. It is an unnatural and artifical molecule. My HMO endocrinologist says she cannot prescribe for me bioidentical aldosterone. So I have an appointment next month with a different doctor and I hope I can get a prescription to at least try it. Maybe it won't have the side effects of florinef, maybe it will, but if I don't get a chance to try it I will never know.

Last edited by hayguy; 01-07-2013 at 06:44 AM.

 
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