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Old 02-13-2013, 04:19 AM   #12
VeeJ VeeJ is offline
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Re: Unknown autoimmune, nonspecific symptoms? help please!

Hi. I'm just a patient, of course, but I suspect these tests don't "absolutely" rule out lupus or antiphospholipid syndrome, but that's ONLY a dumb guess on my part, based on at least one value (APTT) appearing to be elevated. While that single elevation may not be enough to diagnose anything yet, it may point to the need for future retesting... What I'd want my doctor to state very clearly: what should happen next (like follow-ups).

Frustrating, yes... but, alas, being in limbo is common in the world of autoimmunity. Most important thing is not to lose faith: please keep trying & stay on top of any new or worsening symptoms. And let us know what happens next & how you're doing, OK? Sending hugs, Vee

 
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