Re: Limb Girdle 2a pain
Hi Mandy, Thanks for the reply! Maybe a wheelchair would help...I get around with a walker right now but holding myself up has been more difficult lately. I have never tried meditation, might be worth trying- I really have nothing to lose.
Positive attitude is really hard right now, I've had the pain for a long time and I've tried a million things for relief. I also get super frustrated at people who tell me that when they look online it says "pain is not associated with limb girdle MD". Anyway I appreciate the response and if anyone out there has some pain relief advice or just wants to vent about the issues you're having regarding your disease I'll listen- This is all very new to me and I don't know a single soul with MD so I'm very much learning as I go on this crazy twisted journey.