Re: Where to go next?
Wow, what a schedule! You have a busy life, but I do understand the loneliness that finds it way in as well. I encourage you to continue to follow any leads your doctors give you, including the visit to the neuro. When we continue to experience symptoms as varied as yours are, we must continue to dig our way through all the different approaches to a cause. You may have several interacting issues that add up to this combination of symptoms. If you can peal away at the onion, the symptoms may detach from each other.
If the neuro can identify any sources of some of your issues, perhaps the rest of the puzzle can fall into place.
If anxiety or stress related symptoms can be resolved, that would solve another part of the puzzle.
If you can make an effort to focus on your sleep habits, that too may help.
We have to be our own best friends and keep after any issues we have until they are solved. We cannot let one or two doctor stop us from getting the answers we need. It takes some practice and some encouragement. Yu can always get the encouragement here. Please keep us undated.