Thread: Frustrated!
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Old 05-02-2013, 06:58 PM   #1
cheryl-369 cheryl-369 is offline
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Join Date: May 2013
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Frustrated!

Hi! I am glad to find this board! Thanks to whomever started it about LD.

I am not sure if I have LD or some other tick-related disease. About 5 years ago, I removed a tick from my stomach. It developed about a 12 inch rash. But, because it wasn't a bulls-eye, it was nothing to worry about, says idiot doctor. (I can just hear someone thinking, UH-OH!)

Since that tick bite, I have had low-grade temps, (but not high enough to worry about, according to idiot doctor),

Fibromyalgia (caused by a need to see a shrink, according to idiot doctor) and it's just "over-active" nerves (said the idiot rheumatologist), which is a variation on "it's all in your head" that they were calling it a few years ago

Chronic fatigue syndrome (that will go away if I just go exercise more, according to the idiot doctor). Exercise 5 minutes a day if that's all I can manage and "work up" to it, was the suggestion. Like, when getting out of bed is the most energetic thing I can do, and wouldn't do at all if my bladder wasn't full, then exercising 5 minutes is impossible. I'm talking some serious "fatigue" here.

A new diagnosis of arthritis in multiple joints including "rare" arthritis sites like elbows and jaw (but that's just because I'm aging, according to the idiot doctor), like how many elderly people get arthritis in their jaws and elbows before hips and knees?

High Rheumatoid Factor (but not high enough to mean anything, according to the idiot doctor)

High white blood cells (but not high enough for an "acute" infection, so nothing to worry about, according to the idiot doctor . . . and besides, I have no symptoms of an "infection" DUH!)

Elevated liver enzymes (but since there are no other symptoms -- are you kidding? -- then it doesn't mean anything, according to the idiot doctor)

Depression, anxiety, and mental status changes (but what can I expect when I really just need a shrink, according to the idiot doctor), like being active then can hardly get out of bed wasn't a cause for depression on its own merit

Getting the picture? I wonder what labwork is for, if doctors ignore the "normal range" and decide that something isn't important when I have abnormal labs and symptoms?

So, it gets better, or worse, depending on your point of view, I guess!

Two weeks ago, I got another tick bite. This time, the nice little tick didn't leave any doubt about it, because the bite was an ugly, inflammed, dark-bruised, nasty looking bite about the size of a 50-cent piece at the time I found it, that was getting bigger every day and the center turning pale. I watched it for 2 days, decided it was getting to the point of real concern, so I got in my car and drove to the emergency room. I waited two days because I'd been through all this before. But, this time . . .Happy day!

The doctor at the ER -- ER because it was 2 weeks before I could get an appointment to see my regular doctor -- gave me a 3 weeks course of Amoxicillin, because I don't tolerate Doxy very well. And drew a bunch of blood for the lab.

Guess what? After battling all these symptoms for 5 years, after just 3 days of antibiotics, I was feeling better than I have in years! So all I needed after all this time was a common antibiotic?

Notice here that despite me reporting a tick bite and many symptoms and lab that certainly suggested that something was going on, not one doctor did a PCR or Western Blot, or even a blood smear. If nothing showed up on a chem profile and CBC in the really-really-high range, then there must be nothing wrong! Don't these idiot doctors LISTEN???

I am elated that the antibiotics are making me feel so much better . . . and incredibly frustrated. I actually cleaned my house this week, and felt like doing it.

I will beg, borrow, or steal whatever antibiotics I need if idiot doctors don't start listening to me, and start taking this real seriously, because this has completely destroyed my life! Hint --> I don't have much of a life anymore when going to the grocery store is all I can manage for an entire week.

I need your advice. What needs to be done? Not what some idiot doctor "thinks" but what REALLY needs to get done? Will 3 weeks of antibiotics do it? Is this going to relapse? I don't care about whatever group, study, or other group of idiots decide is the "best" things, I'm talking about what you all KNOW will help cure this or at least let me stay feeling no worse than I am right now on the Amoxy. My energy is returning. It feels like I've been living in a deep mental fog, and I'm driving into clear weather. I so much don't want to go backwards. I so much don't want feeling this good to end. What do I need to do? When the antibiotics end, will I start feeling bad again? Do I need longer term abt's than 3 weeks? What? Tell me what your experiences have told you, so I can do it. Help!

Thank you!

 
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