Originally Posted by tummy123
I'm having very similar issues to some of the posters on here ... one that intrigues me is the heart murmur/valve issues. Have any of you with this in common ever figure out what's going on? Here's a brief history of my issues ...
Just had my second child on 5/7. Had heart palpitations/extra heart beats during pregnancy pretty bad. I've had issues with my mitral valve since I was a child.
3.5 weeks after delivery I started having horrible abdominal pain and ended up in ER, diagnosed with gallstones. I had my gallbladder removed after another painful attack a week later. I was great for 2-3 weeks ... then started having painful attacks again. They're to the point now that they feel very similar, so I wonder if it was never my gallbladder.
I've been in the ER 4-5 times in June and July. My labs are almost always normal, however, now the attacks are getting to be the worst yet and my liver enzymes are elevated quite a bit (ALKALINE PHOSPHATASE, ALT, and AST). Basically an attack goes like this:
30-90 minutes after eating (or drinking any alcohol)
- HORRIBLE upper central abdominal pain
- sometimes followed by vomiting or diarrhea
- Sometimes chest pain
- Sometimes shortest of breath or passing out (I think this is due to when the pain in very severe)
- Pain can become so severe that I can not get comfortable and am in worse pain than labor, literally
I've had the following and all are normal:
- HIDA scan
- Ultrasound to check for missed stones
- Labs for bilirubin
Only thing abnormal (other than the pain/attacks)
- Liver enzymes elevated
I FINALLY got approval for a CT scan of entire abdomen/pelvis if I end up in the ER again and am symptomatic
I'm supposed to go back to work from maternity leave next Thursday and I'm very nervous. When I have one of these attacks I'm dragging someone over to my house (usually in the middle of the night) to watch my toddler, while my hubby and 2 month old take me to the ER. Then I'm out 1-2 days. I'm so sick of pumping and dumping since Iím breast feeding, and putting people "out" who have to help me and my kiddos. My poor hubby has taken so much time off work and it's getting old. Not to mention I miss eating and drinking anything other than water. But Iím sure all of you on here you can relate.
Any ideas? Particularly people with the heart valve connection ....
THANKS a million
I have mild Mitral and Tricuspid valve regurgitation with moderate Pulmonary valve regurgitation with mild restrictive lung disease. The main symptom is occasionally mild shortness of breath but only when I eat and lay down. So it is not the caused of my pain.
My HIDA ejection fraction was 26%. Other than that was normal. GI said it was an inflammation of gallbladder, referred me to a surgeon but he refused to operate as he did not think that my pain was caused by that.
Then I had a comprehensive blood work Celiac disease done - positive but colon biopsy was normal. GI said it could be Autoimmune Celiac disease so was on Gluten free diet for a while but did not see the differences.
Now all specialists I have seen contributed the cause to Lupus. (I have lupus as well). Anyway, they all said since nothing big really popped up so it could be an autoimmune disorder.
Started in Feb 2011 until now, no one has found the "real" cause. The pain is still there but luckily it is only mild-moderate so I bare with it (not taking pain killer due to Chronic Hepatitis stage 2). I was frustrated for years. Now I am back to stay positive and trying to live my life more happily.
I personally think that if I really have something bad, eventually, it will show itself, become very severe, damage something and then hope that someone will find the cause.
I kind of think that they could not find it because maybe it was mild.
Anyway, I wish you the best. Give me updates if they ever find anything.
The only symptom I don't have is Loose stool. My bowel movement is always normal.