Originally Posted by Esmo77
I was diagnosed with a collapsed bladder at birth. They removed 1/2 of it when I turned 3 and now I am 37 (today!!). Anyway they call my problem a neurogenic bladder and since it will not empty completely I have to do intermittant caths 4 x a day to aviod infection. I have been doing this for about 12 years now and it is just a part of my everyday routine. Anything is better than a bladder infection/spasms. You may not have to go that route but with urine retention you usually end up infected (or at least I do). Also take suppression meds 1x day to ward off the little bacterias my bladder seems so attracted to. Good Luck.
Wow you've been through a lot. Sorry to hear it's been rough for you. I have had several infections within the last three months and am going for a follow up soon. I will be put on a different antibiotic prophylactically. I thought one of the meds neurontin I've been taking has had an effect with retention. My urologist said he thinks it has something to do with it while the neurologist says he doesn't think it causes that and that neurontin is metabolized by the liver not the kidneys. I thought I saw something on the internet that said it was metabolized by the kidneys. I am beginning to trust my urologist more than my neurologist and am about ready to stop the neurontin all together but I don't want to be in pain again. I'm trying slowly to get off my meds for chronic pain. I wish you luck in finding out what's going on. Keep us posted.