Originally Posted by jennfer
Hi everyone! I am new to this board and this subject. Today my doctor diagnosed me with Wilson's Syndrome. Have any of you heard of it? It is when all your symptoms look like hypothyroidism but your blood tests are normal. For the last month I have been taking my temperature and everyday it has been below 97.8. Sometimes as low as 96.4. The MD says that this is one of the main determining factors of Wilson's Syndrome. The other symptoms I have are depression (been on Prozac since May 2003 with no benefits), irritability, severe fatigue, dry skin, low sex drive, constipation, hair loss, and headaches. I also have been trying to get pregnant since October with no success, which my doctor says can be related to my thyroid. He has started me on a starter pack for replacing the T3 level. Has anyone ever been on this "therapy"? He says he's had tremendous results with his patients and that he is basically "reprograming the thermostat". Once the thermostat is set then you can wean off the medication. Does all this make sense? I am excited about this because I finally have answers to some of the things I thought were just "me". And hopefully I don't have to live with these symptoms all my life! If anyone knows much about Wilson's I would really like some input. This is all very new to me. Thanks!
in my view, it does not ... i think wilson's syndrome is another name for "slightly hypo" ... i'd appreciate knowing your actual TSH, fT4, and fT3 values, since all your symptoms are consistent with plain old hypo ... posting them would be very helpful ....
cytomel is certainly a treatment for hypo, but you may need some synthroid/thyroxine (T4) .. you can reduce or eliminate the symptoms with the right meds, but ... "reprogramming the thermostat"?? hmmmm ...