LPR, need help - Acid Reflux / GERD Message Board

umanac · 08-24-2005, 03:39 PM

hello everyone, after developing a chronic cough over christmas, and seeing multiple doctors, i was diagnosed with LPR in the middle of May and was placed on Nexium 2X a day by an ENT. After about a month of cutting out all the suggested foods and taking Nexium i decided to go to a GI. The GI put me on Reglan 4 times a day (one before every meal, one before bed) in addition to my Nexium that i was already taking. After waiting a few weeks and still not feeling much better i scheduled and Endoscopy and also went back to the ENT. The Endoscopy came back completely normal. When i went back to see the ENT he told me to start taking Pepcid before bed at night, in addition to all of the other meds (keep in mind this is 7 pills now). He also sent me to get a test done where i eat some radioactive food and they monitor my stomach. This test also came back normal. So, i decided to just shut up and keep taking my medicine for a while after all of this. I had my 3 month follow up at the ENT 2 weeks ago and he looked at my throat and said that it looks better but its still not completely healed. He also told me at that time that i was going to either have to take medicine the rest of my life or get surgery. He didn't say that i needed the surgery but said that some people choose to have it done as opposed to having to take medicine the rest of their life... After he told me that this was going to be a life long thing i was going to have to deal with I completely freaked out. After a few days it got so bad that i through up! I just simply couldn't and still can't cope with the fact that i'm going to have this the rest of my life. What's worse is that my cough still is not completely gone and i have started to develop a small lump in my throat... So, it has now been 4 months since i was diagnosed with LPR and still have symptoms. The ENT told me that i was going to continue to get better and my symptoms were going to continue to improve. Is there anyone out there that has been through this and knows what i am going through and can provide some comfort? After 4 months did you continue to improve in your symptoms? I feel like i'm going insane. I just need someone to talk to who knows what is going on. Any words of comfort would be appreciated!

umanac · 08-25-2005, 07:56 AM

Laryngopharyngeal Reflux Disease

kallen90 · 08-26-2005, 08:04 AM

I'm not able to provide any comfort as I am going insane right along with you. I have not been officially diagnosed with LPR, but that's what I think it is from reading all the posts on this board and doing other research. I have only been to an ENT so far thinking it was some sort of issue with my sinuses or something. My symtom is mainly the cough to the point of choking and more recently throwing up. I have been on Nexium 1x day for over 30 days now but recenty was given zantac 150 to take at night also - not much improvement. I have cut everything I can think off out of my diet. I'm calling this morning to get into a gastro, but will make sure they have experience with LPR before I choose one to go to.

Did you go through the 24 ph test for your diagnosis?

gnznroses · 08-28-2005, 02:13 PM

i've been suffering from LPR and GERD for alomst 2 years now. absolutely nothing works for me. my GI also prescribed Reglan but i was afraid to take it after reading about it.

my bed is raised about 11 inches, i take 2 nexiums a day, and last night i took about 4 Tums extra strength, a cimetidine pill, and 3 gaviscon tablets, and it still didn't help. i dunno what to do and it's really bumming me out...

umanac · 08-29-2005, 08:08 AM

I just wanted to give an update to everyone. I have been suffering with a chronic cough for months now, on Nexium 2X day, Reglan 4X a day, and one pepcid before bed. I have slowly gotten better over the past 4 months on medication. Last week i developed a lump in my throat that i was afraid would never go away. I have also been afraid through all of this that i would never be able to sing again because everytime i have tried since my cough i couldn't sustain a note. The past 3 days my throat has been abseolutely clear, i have had no cough, and my singing voice is excellent. I think i have finally figured out that with LPR there are certain trigger foods that will affect me, its just a matter of figuring out what they are. I finally have a positive look at the situation and believe that there may be hope in actually eliminating all of my symptoms. I hope that this can provide some comfort to those of you who are suffering and don't feel like your getting any better. Just hang in there! Also, my doctor has said that there are no side effects of long term use on Nexium.