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Old 06-10-2006, 05:07 AM   #1
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Allergic to PPI's

This is my first post here! I'll try to be brief.

Last year I was under horrible stress, and got sick with a bad flu. Ended up with chronic coughing, throat clearing, etc. All through last year the doctors put me through He*ll with misdiagnosis - allergies, asthma, and worse. They made me sicker with worry. Finally ENT said I head GERD -he saw redness in throught -give me Nexium I took the samples and get better- Yes! Then they called in a script -insurance wouldn't cover Nexium but substituted Prevacid. I had an allergic reaction. Now PCP says I can't take any PPIs. I tried more Nexium samples and they started making me itch. PCP put me on Zantac 300 mgs twice a day (600 total). Worked for awhile now it's not so effective.

Husband and everyone including me is sick of hearing me cough - it waxes and wanes through the day. I have hoarseness and a burning throat. Sometimes in the AM my nose runs like a sieve.

PCP sends me to Gastro- who spends only 10 minutes and tells me I need endo, some mammamontary (spelling?) and 24 probe where they will run a tube down my nose and leave it taped to my face for 24 hours. Gastro (without doing these tests yet) informs me (after only 10 minutes remember) that I should have surgery and says OBTW 1 out of 1000 die from complications WHAT? I say. FORGETIT I say. I won't take those chances plus he said 62 % go on to take PPIS and some have bad side effects - gas, diarreah, bloating, etc. I won't do this surgery -I am too scared. But he still wants to do all 3 tests. Should I? What's the point if I can't take meds and won't do surgery.

I have been in tears since hearing this. Does anyone have any ideas about what to do if you're allergic to PPIs? I simply cannot do the surgery with those odds he gave me. Should I still do the 3 tests? The thought of a tube down my throat fo 24 hours makes me sick with fear. I could puke from worry.

I'm otherwise healthly, don't smoke, not everweight, workout for 1 hour per day. I have the bed raised up on blocks Why is this happening to me? If anyone has any thoughts or could just respond that they know how I feel I would appreciate it because no one else undertstands. I feel like I have been trapped in a nightmare for the past 1 1/2 years. I just want things to be like they were before 2005.

Sorry for the long first post. Thanks for listening.

Sara

 
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Old 06-10-2006, 10:18 AM   #2
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Re: Allergic to PPI's

Hi,
My first thought about this is can't you be given a medication for the side effects of itching from the PPI meds? Or what was the other reaction to the PPI?

I'm having tests on this Monday and I'm scared to death about hving a tube down my throat so I know how you feel there.

I'm new to these problems so hopefully someone else with experience can give you advice.

 
Old 06-10-2006, 10:55 AM   #3
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Re: Allergic to PPI's

Hi Taape, The side effect was just itching, but my PCP and gastro said it could escalate to worse things if kept taking it. I'm thinking of visting an allergist to get their opinion. If I knew I could take a PPI and only itch -I would find a way to tolerate it. If I could be assured it wouldn't escalate into something worse.

Thanks for responding. Good luck with your test. I'll be thinking of you. Please let me know how it goes - is it that mamamontry (sp?) test?

Sara

 
Old 06-10-2006, 12:44 PM   #4
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Re: Allergic to PPI's

Sara459-

I too went through long bouts of chronic coughing which began in December of 2001. I went through a lot of trial and error with my PCP to find a combination of things that worked. I was on Protonix for a couple years which helped some, but the cough kept coming back. I finally went to the GI specialist. The cough was my main symptom with occassional belching. I never had any heartburn though. I first had an endoscopy that showed no evidence of acid--my esophogus and stomach looked fine. I was then advised to get the manometry and 24 hr PH. Even though I didn't want the tube down my throat for that long, I was willing to do it if it could help figure out if acid was actually a problem for me.

I went in at 8:30 in the morning with an empty stomach. It was a technician who performed the procedures. The manometry was done first. It measures how well my esophogeal sphincter was working and also gives an exact location of the sphincter which allows them to know where to place the 24 hr. probe. For the manometry, I had the back of my throat numbed with a spray that tasted across between bananas and gasoline (it tasted exactly like the technician said-luckly the taste didn't linger). I was asked which nostril was the least stuffy. He used that side to do the testing. The nostril was numbed with a gel. After they had a couple minutes to take effect, the technician placed a tube through the nostril and had me swallow water through a straw to help the tube down my throat. It was uncomfortable, but it didn't hurt. It helps to relax. The tube was connected to a computer. The technician moved the tube up and down in small intervals to take readings. He also had me swallow water about 12 times so he could get readings on how well the sphincter was working. Once he was done he pulled out the tube. This was done in one quick pull and didn't hurt.

Once the Manometry ws completed, he moved on the the PH probe. This was a different tube. It was smaller than the first tube by about 1/3. For me this one was a bit more uncomfortable when he inserted it. The technician said it was a bit stiffer than the first tube. There are numbers on the tube that help the techician know how far the tube goes down based upon location of the sphincter from the manometry. Once the tube was down, he taped it to my nose and cheek and wrapped it around my ear. The tube ended at a round computer that took measurements of reflux throughout the day. There were a couple buttons on the computer that I had to touch whenever I ate or laid down. I was also given a piece of paper to mark every time I had a symptom during the day. This helps them know what activities I was doing during periods of reflux. At first, I found myself swallowing a lot with the tube in my throat. I guess it was just an automatic response to having something foreign there. Also, occassionally when I was eating, I could feel a tug on the probe. It didn't hurt though. I was instructed to go to work and do all normal daily activities with the probe in so they could get a good reading. This wasn't fun, but then everyone I work with had been putting up with my cough for years (they always knew when I was coming down the hall by my cough). I went in the next morning and it only took a few seconds to have it removed. The only other thing I didn't really like was that I couldn't shower. I just went home after I got it out the next day to shower though. I went back in about a week later to get the results.

I was glad I had the tests done, because it confirmed that I did have acid reflux. I found my esophogeal sphincter was not closing properly and I had acid in my esophogus 25% of the day normally and 35% of the time when I was eating. This was while I was already following the prescribed diet of avoiding items that aggrevate acid reflux. I now have my bed propped and take Prevacid 2X per day.

By the way--I think it would also be helpful to go to the allergist. It turns out I needed to be treated for allergies, PND, asthma, and GERD before I got my cough under control. It took me years to find the right balance, but I have now been cough free for almost two months and counting.

I know this response was long, but I hope it helps.

Last edited by MountainReader; 06-10-2006 at 12:45 PM.

 
Old 06-10-2006, 01:02 PM   #5
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Re: Allergic to PPI's

MountainReader,
Glad you fixed your problem.
How did you fix PND and GERD?

Last edited by noptical; 06-10-2006 at 01:06 PM.

 
Old 06-10-2006, 07:02 PM   #6
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Re: Allergic to PPI's

noptical- I wouldn't say they are "fixed" but I got them under control through medications and avoidance of certain items. Originally, I had immunotherapy for some allergies. (Although I ended them about 5 years ago and am getting ready to start them up again.) I also removed some allergins such as my pet--which was hard to do. Over the years, I have tried various medications for all conditions to get rid of the cough. Currently, my meds include: Allegra, Singulair, Flonase, Astelin, Advair 500/50, Prevacid 2x/day, Albuterol as needed, and a couple eye drops for allergy eyes and dry eye. I also stick to the acid reflux friendly diet.

Someday, I would love to find a way to get off all the medications. In addition to being a lot for my body, they get extremely expensive each month.

 
Old 06-11-2006, 03:13 PM   #7
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Re: Allergic to PPI's

Uh... for one, I'd seek another opinion with another gastro.. sounds like this guy is wanting to run alot of tests off the bat... sad to say, but probably to get paid.. secondly, what surgery did he suggest??? I can't think of any gastro one besides removal of the esophagus that would be that detrimental to you to worry about complications... if all this is true about what your gastro said, give him the boot quickly

 
Old 06-11-2006, 04:10 PM   #8
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Re: Allergic to PPI's

There's tons of PPIs:

Nexium
Prevacid
Prilosec
Aciphex
Protonix

If you are allergic to one, you should be tried on another.

I would get another GI doctor. I have seen 3 GI doctors, all of which don't recommend the surgery to anyone as it is risky and has an very low success rate. One of my doctors used to do it and he said he has never seen one person not back on PPIs within a year.

 
Old 06-11-2006, 06:52 PM   #9
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Re: Allergic to PPI's

Moesciphish, The Gastro was taking about the Nissan Fundo. And he's the one who said 1 in 1000 will die from it. Acccck! I'm not trying to scare anyone else but that's what he told me.

blondy2061h - He tried to tell me that if you were allergic to 1 ppi you would be to all. I'm going to the allergist to see what he has to say.

MountainReader - thanks for your detailed and informative reply - Congratulations 2 months without a cough. That's awesome. I'd like to go 2 hours!

 
Old 06-12-2006, 11:03 AM   #10
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Re: Allergic to PPI's

I agree with not getting the surgery unless it's a last resort. I would go through with the tests though because it's possible they might find that something else is causing it and maybe the PPIs aren't even the right direction! I also agree with looking at other PPIs.. have you taken the OTC Prilosec? You might be successfull with that even if you have to take 2 a day to compensate for it not being as strong as prescription versions.

 
Old 06-16-2006, 02:30 AM   #11
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Re: Allergic to PPI's

Hi i have just put a reply to someone else before i noticed your message i am going through the same thing i can not take anything either so i am in a right mess,i really tried hard to stay on mine i was taking omeprazol,they made me itch so much.i started to panic in the end because i thought my throat may close over,i also found normal antciads did the same.

 
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