Originally Posted by neddyflanders
I went to a Gastro and an ENT. I had a tube stuck down my throat with a light on it (went in through the nose). They asked questions about snoring (I have none). They both said I don't fit the type (skinny, no snoring) and also said the burning tongue kind of proves it's acid causing the breathing problems.
Neddy, that ENT isn't versed on apnea...how frustrating!!! I consider that malpractice coming from an ENT. Those ENTs should know that only about 1/2of the patients with apnea snore (I don't). And you don't have to be overweight to have apnea (I am but I believe it is because I wasn't diagnosed when I was a skinny child). FYI, although my pulmonologist visually examined my throat and mouth, I never had a tube stuck down my throat!
I was never given a questionairre to fill out. I may try to go to my general doctor and see if he can order a sleep study since the others seem to be against that.
It might be a good idea to see a gp as there's an effort underway to educate the gps on sleeping disorders. You might call ahead and ask if the gp has ever made referrals to a sleep clinic to see if they're somewhat versed in sleep medicine. Or you might want to contact your insurance company to see if they might recommend a gp who is versed in sleep medicine and who has made referrals in the past.
Might I recommend that you do some "homework" and look for the tests and quizzes that help identify sleep disorders? There are tons of them on line and for the most part, they were the same questions that I answered on the questionaire at my doctor's office. I wish I could tell you where to look but this board won't allow it. There is an Epworth sleep scale that is the "standard" test, a little 5 question test and you can find that on line but please don't rely on that alone--do the other tests as well. You could also tape record your breathing...and if someone could stay overnight with you, perhaps they could give you some feedback. And last but not least, keep a sleep diary for about two weeks. It helps to keep a notebook by your bed to write down when you go to sleep, how often you get up, how many times to the bathroom, etc. Then when you go in to see the gp, tell him/her: I think I may have a sleep disorder and here's why...but make sure you focus on the sleep problems because the gp might not understand or "get" the acid connection--let your sleep doctor deal with the acid thing as he's the "expert" in the sleep/acid correlation.
I'll have to check with insurance though, I read it can cost around 3 grand, I don't have that. I wonder if theirs anyway or anything I can do on my own to prove it one way or another? Any kind of treatment at the drugstore?
Yes, it is expensive BUT you may not need to have a study done to rule it out. Like I said, I had to fill out a questionare and see the doc before he even considered a study. Not everyone needs a sleep study nor does everyone have one done. That's for a board certified sleep specialist to decide---not a gp, not a ENT, not a whatever, UNLESS they have a background in sleep medicine. I would also add that sleep apnea goes hand in hand with acid reflux, diabetes, high blood pressure, and cardiovascular disease and believe me, treating the apnea is far more cost efficient than treating the other conditons, some of which are life threatening! As far as I know there isn't any kind of treatment at the drugstore. And unfortunately, cpaps need rx's even though they just blow "ordinary" air--I suppose the pressure would be the concern.
Neddy, I am sorry to have repeated myself as you know much of this already. I did so for others who may benefit from the info.
I hope you'll get the help you need...if there's anything I can help with please let me know. I'm so very frustrated and angry that you're not getting the quality medical care you deserve despite your tenacity.
Take care and keep in touch.