I'm home and have the tube up my nose as I sit here for 24 hour ph test. It is lunch-time here in Uk and I think I will be pretty fed up with this by tomorrow, though so far not as bad as I feared (and I'm a big baby)
My nose is bleeding slightly and I keep having a tiny gag. I'm used to having rocks in my chest - so this has just added another to the base of my throat.
The manometry was uncomfortable, but not as bad as I had feared because I had the endoscopy with just throat spray and I would DETER people from having it that way...I want a bang on the head if there is a next time.
Thanks for 'listening'
Kim
Good luck to you. I dread having a tube up my nose but I think it is going to happen soon. Especially if this h.pylori doesn't clear up. Please keep us updated on your tests.
Hi Laura, Thanks for replying! This forum is so slow I thought I'd be talking to myself for a good while! It is now mid-afternoon here and I have the biggest lump in throat feeling. I get the 'lumps' lower down usually, so I suppose this proves that the thin tube must be causing this sensation. Maybe in those of you who feel the lump at the base of your throat - it could be a similar feeling caused by mucous. The nose part isn't half as bad as I had feared, very slight - like the blocked feeling you get from a cold. The worse thing for me is this huge pressure at the base of my throat - just getting worse by the minute.
I feel a bit weak and dizzy too, but was very keyed up this morning...
I feel for you! I had that test done 3 months ago before my surgery...and it wasn't pleasant. Hang in there!
Hi, Thanks! It isn't as bad as I had feared, but I will be glad to have the tube out tomorrow. Just tried to eat veggie cottage pie...a bit tricky compared to milk and ensure that I had for dinner.
I thought keeping a bit of a diary here might help someone who hasn't yet been for the testing. If a coward like me can cope - anyone can
Hang in there. I just had the impedence test on Friday. My throat felt REALLY sore the whole time and everytime I swallowed it pulled on my nose so it was a bit tough to eat. I did manage to eat 3 meals though and found that I had much more heartburn than usual, especially while lying down. I wonder if it was because my throat/esophagus was inflammed from the foreign object so it was more sensitive. Ill have to see what the results are next week. How much longer do you have to go? By the way, I had to take it out myself because it was Saturday and it felt amazing once it came out.
Thanks scott, I am going to try and sleep now. It's a bit early for me at
10:30pm, but I'm fed up of not being able to move around. You just can't turn your head without the tube pulling, as you will know
I have this thing removed mid morning tomorrow. I was hoping to get the results, but if you've had to wait, I bet I will too.
I don't know how you managed three meals; I feel squeamish about all the pulling and my nose started to bleed!
It really hasn't been as bad as I had feared though When you think about it ; we all get used to suffering with this awful set of symptoms. Maybe a healthy person would find the test worse in contrast to feeling healthy to start with.
Kim
Hi, I have been de-tubed - alex, brave and me don't belong in the same sentence! I'm very sensitive to pain, and panic if something feels weird!
Please have these tests done. It felt more like the sensations you get with a bad cold. Even the slight nose-bleed just tickled and burned slightly. The heartburn was quite bad bit I'm used to having that. It was good to get the tube out though, because when you turn your head - you get a very slight gagging, even thought he 'tube' is more like a fine wire.
I was a bit worried this afternoon because I had slight blood in stool that was dark red. When we have these symptoms, I think bowel problems are on our list of 'what ifs' - I'm wondering if the test might have caused it - anyone know please?
~Kim~
K,
Congrats on getting though that!
Keep us posted on the results.
Maybe the blood is just from some bleeding you swallowed in your nose...or if it was bright red you may have a fissure or something.
Hi alex, Thanks for quick reply. It wasn't bright red, darker. I think once blood is digested - it goes black, but maybe a bit got through un-digested. I don't want to have to worry about anything else I'm always afraid this is going to turn out to be cancer somewhere, because symptoms came out of the blue and have become so severe. Then again, I'm SUCH a worrier. My poor hubby -good job I have this forum!
Did you get your results yet? By the way, thank you for responding to my other thread. My GI Doctor said if any symptoms persist that I may want to consider a manometry/ph probe. I considered it for about 1/2 of a second. Hah. Then, I remembered that you posted about this and wondered if you have received any information yet.
It sounds like you have many polyps. They only found one in my stomach, so I am not too concerned about my biopsy as I read that H. pylori can cause polyps.
Are they trying to see how much acid your stomach is producing? Or, is it that bacteria they are checking? I feel a little ignorant here because I didn't ask the doctor what this test tells him that the scope couldn't.
I hope your endurace of this may serve to help resolve some of your troubles.
Hi, Thanks for asking about me! I go back for results on Thursday. Test was for motility and acid production. First part of test was the manometry and the second part was the 24 hour ph test.
I was checked for H Pylori almost a year back, when I had the scope - it was negative.
Motility test shows normal muscle contractions (or otherwise) and ph shows acidic level of any reflux.
If you need these tests; they are not nice - like a smear test is uncomfy, but not painful. Sensations were pulling, slight stinging and a tiny amount of gagging that could be settled with a sip of water. I am super-sensitive to pain and panic pretty easily...if I can do this...anyone can. You get to feel really brave as a reward, because family and friends think it sounds so awful
Kim
Hello ~K~ I'm so glad I came upon your posting about this test...my doctor is ordering it for me and I am nervous about it! I can't remember, did you say you were able to eat with that tube going down your throat? Also I was wondering...you said the test is in 2 parts. What does the first part require? Thanks so much for the info.
Kathleen in CA
Hey Kathleen. I had the 24 hour impedence test a few weeks ago and might have to repeat it on meds. You can eat with the tube in although its a bit tough because if you hit it with food it moves and pulls on your nose a bit and also when you chew and swallow it pulls again on your nose. Its not impossible but I definitely couldnt eat "normally" as they suggested. I think the first part she was refering to is manometry. They do this as a seperate test and also to help locate your LES for the ph test. They feed the tube through your nose into your stomach and then once its in they have you swallow and swallow sips of water to test your esophageal contractions and pressures. The manometry tube is larger than the 24 hour tube but the 24 hour tube just is in a while so it irritates your throat/nose but it feels great once it comes out!
Hello ~K~ I'm so glad I came upon your posting about this test...my doctor is ordering it for me and I am nervous about it! I can't remember, did you say you were able to eat with that tube going down your throat? Also I was wondering...you said the test is in 2 parts. What does the first part require? Thanks so much for the info.
Kathleen in CA
Hi, I am pleased that you are looking for more answers. I was TERRIFIED before this test, and I posted this because, although UNCOMFY and only a very strange person would find these tests fun!! - they are do-able. I had mainly liquid (soup) I managed a tiny amount of fish with a little mashed spud.
I wrote on the pc (hence this thread, lol) Moaned to my poor hubby (got to get that bravery award! If you feel uncomfy or stressed too much during the test ...take sips of cold water, but don't forget to note it in the log they give you, because it lowers acid temporarily
Good luck...You're not just doing this for you...you're helping us all with our research...so keep us all updated...Brave Soldier Girl to be
Kim
~K~....Thanks so much for your reply. Well I'm thinking a valium might help. Yes soup sounds like a good idea...I'll stock up beforehand. Oh I almost forgot...did you say the test was in 2 parts? If so, what was the first part?
Thanks again,
Kathleen
Scott thanks for much for your reply. Well yikes...neither one sounds like a good time. I just have to be brave somehow...I don't think I'm going to get the answers I need unless I do these tests.
Thanks,
Kathleen
Hi....First part was the manometry. Try to relax as they insert very fine tube (you will be given throat spray) Trust me - even a very sensitive gag reflex can be calmed by the mind! You will be asked to take sips of water as the tube is slowly raised and the motility measured at intervals. Part way through this test I thought that I couldn't tolerate the 24hr part, but only because I was having to concentrate on not gagging - not because of pain. BUT the tube used in the 24hr test is very fine and better described as a wire.
I felt a worse 'lump' than usual in throat during the test, but like Scott said: it is great to have the thing removed (like shaking off a bad cold) and you get a sense of having accomplished something! If you hate it too much - come back and shout at me...but remember I did say not nice, and uncomfy, but NOT really painful (and I am hypersensitive to pain)
Good luck, Kim
When you think about it ; we all get used to suffering with this awful set of symptoms. Maybe a healthy person would find the test worse in contrast to feeling healthy to start with. 
