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Acid Reflux / GERD Message Board
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Old 05-16-2007, 11:48 AM   #1
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Unhappy Need Help with acid relux problem

Someone has to know what else I can do. I have been to my doctor numerous times. My acid reflux is very bad. If I bend over I get acid and regurgitation. It also happens when I sleep. My throat gets so irratated I can get horse if I yell. ( Like when I'm playing sports, yelling at a game etc.) If I open my mouth and look in the mirror, I can see a red ring in my throat. I have taken many meds. Zantac 300, pepcid, protonix, you get the picture. Currently I take Prilosec DR (2x a day), Carafate (4x a day), In between I use alka seltzer, Maalox, tums. I do not: Drink, Smoke, eat spicey foods, no soda anymore, no juice, sauce (like pizzie, that kills me), no chocolate. I have cut out everything that can cause issues. I think. I have had two upper gi's.

This has been going on like this for a year and a half now. I get worried, because I heard you can get cancer from this. The meds help a little, but not when I sleep or bend. My doctor acts like it is no big deal. I have asked to see a specialist a few times, but he always wants to try something else. How long should I let him keep trying other meds before I demand to see a specialist? Does anyone have any suggestions on what else might help. I have heard of surgery, but do not know much about it. My doctor said I'm a little young for this, I'm 38, I don't think that's too young. All I know is I don't want to end up with throat cancer.

Anyone have any suggestions??????

Last edited by sgtbrk; 05-16-2007 at 11:55 AM. Reason: add a couple words

 
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Old 05-16-2007, 08:59 PM   #2
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Re: Need Help

Sgtbrk...
I would try and see a GI Doc...I am not sure if they will tell you any more than your primary care, but the more opinions the better. Knowledge is Power.
I am in a similar situation, bending over and lying down kill me. I also have trouble when I do any activity that jostles my stomach. I have gained weight because I am afraid to be too active. I feel like I am having a heart attack, yet I have had every cardio test in the book. Anyway, recently I started drinking DanActive every day....it has taken about 3 weeks, but I have to say that I feel better. I got the advice from someone on this board, and thought I might share it with you! I don't know, I still have bad days and some troubles, but I now have more good days than bad instead of the other way around. Probiotics are great for you and this DanActive tastes pretty good too...
I wish you only the best! I have been dealing with stomach trouble since I was 14 years old and I just turned 45....Long time!
Take Care of you, best wishes!
Crazy

 
Old 05-17-2007, 07:02 AM   #3
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Re: Need Help with acid relux problem

Do not let him put it off. Second chances do not happen twice.. he has dabbled enough it is time for a specialist. Put your foot down, tell him you have no more faith and confidence in him and want to now why and how to treat it now. You are not his personal guineaq pig, so don't let him treat you as such. If the proton blockers are not working and the reflux is doing what you say.. it seems to me it may be a low pH, high volume issue that will require balancing the stomach acid, versus neutralizing it.

Best if luck and do not let them blow you off.
Sincerely,
MG
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Old 05-17-2007, 06:41 PM   #4
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Re: Need Help

Thanks for the info. I also get chest pain occasionally. What I hate the most is the burning sensation in my throat sometimes when I wake up. I used to drink soda, but now I have switched to Gatorade. I'm still trying to figure out what makes the reflux flare. Just when I think I have it figures out, I eat something and it happens again. If you have any other tips, feel free to pass them my way....Thanx

 
Old 05-17-2007, 06:45 PM   #5
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Re: Need Help with acid relux problem

Never thought of that. Low PH. I am emailing a request to my DR. for a refferal to a GI doc.. Need to get this stuff stopped. Thanx , I just thought too much acid, take more blockers......

 
Old 05-17-2007, 07:53 PM   #6
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Re: Need Help

I've been disapointed in my Dr. as well. My problem has only been going on for about 7 months but so far the Dr has pretty much blown me off. He's gave me a few PPI samples to try ...not much help... and had an upper GI ran. He didn't see any problems with the GI so he said to use OTC meds as needed. So now I'm blowing him off and plan to switch doctors. Unfortunatly there is not a lot the Dr. can do other than prescribe PPIs or in extreme cases use surgery. But they do have the test to determine how much damage has been done. They also can do a number of tests to isolate the problem some what. Sometime Drs really tick me off. I wonder if the problem is with the doctors or the insurace companies. A few years ago when my company had a different issurance plan my Dr. would try to get you to run 5 different test if you went in with a runny nose. Now for some reason you seem to have to hit him the head with a 2x4 to get his attention if you want something other than a prescription. OK I'm finished venting.

 
Old 05-21-2007, 09:22 AM   #7
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Re: Need Help

There are things the Dr can do. They can figure out what the cause is, low ph,etc. The pills they are giving me prilosec (prescription) and Carafate also prescription, don't seem to work well. It just seems as though you must find the right DR. We need to get around the regular DR and get to the specialists. They can do more than a GI to test for the problem. I also had a upper GI, and the Dr said it was normal. I told him the acid reflux is still there and that is not normal. They seem to want to run a test and if it comes out normal, tell you there is no problem. I'm tired of that. They keep pushing you off and that is not good, because the longer they do that the more damage is done. What is really bad is when you get sick. Then it's twice as bad on your throat. Do you ever get a horse voice from the reflux. It's a bummer that reflux irratates your vocal cords. But can't avoid that , there in your throat. I just worry that the DR don't treat this as a big deal. They are not the ones suffering with it. My DR really made me mad the last time I saw him. When I told him, it was still a problem he said in a irratated voice " Maybe you have stomach cancer". I said "What"!!!!! I told him that I could not believe what he just said. I told him just because I have reflux like millions of others, you would say something like that. He immediately backtracked and said " I don't think you have cancer, I just don't get why this problem still exists after I gave you the medication". So I am now trying to get an appointment with a GI.. Or should I get an appointment with ENT. Not sure.

Last edited by sgtbrk; 05-21-2007 at 09:26 AM. Reason: add a period

 
Old 05-21-2007, 09:29 AM   #8
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Re: Need Help with acid relux problem

Do you know what Doctor I shoud see. A ENT or a GI doctor, not sure. Thanks for any help you can give....

Last edited by sgtbrk; 05-21-2007 at 09:29 AM. Reason: add a word

 
Old 05-21-2007, 09:40 PM   #9
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Re: Need Help

I agree that more than an upper GI test is needed and they do have the tests to better determine what is going on as well as the condition of the esophageal tissue and stomach lining. But when it come right down to it all conventional western medicine has to offer are PPIs and or surgery. While these must help a lot of people you can see on this site that there are many who do not get relief from these conventional treatments.

Since the meds don't seem to be helping with the burning I wonder if you could be having problems with bile reflux. The sympoms are nearly identical to acid reflux. I think they can determine this using the PH test. Problem is that if it is bile reflux they don't really have much to help and usually just try to treat it with PPIs and you've already tried them with out a lot of success. There are a number of people on this board and others who have reflux that did not respond very well to acid reducing drugs. Some of them found that grain products and or dairy products where causing the problem. I have recently decided to see if that might be the case for me. It hasn't been long enough to declare victory but for right now it seems to be making a noticable difference. After doing some research I now see how a digestive problem that really occurs after the stomach can be the cause of GERDS be it acid or bile. Gas is the main problem when foods fail to break down properly in the digestive track. Some believe this gas puts presure against the stomach and causes reflux others believe the pressure actually builds to the point that it releases from the intestinal track back up and thru the stomach bringing some of the bile with it. The thinking goes if you can reduce the gas you can reduce or eliminate the occurance of reflux. I figure if nothing else is helping I might as well try something. Maybe thru trial and error I can find something that will resolve this.

 
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