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Old 05-27-2007, 12:41 PM   #1
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slsmith1122 HB User
Barrett's Esophagus

Has anyone out there ever been diagnosed with Barrett's esophagus?
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Old 05-27-2007, 12:56 PM   #2
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jpeder04 HB User
Re: Barrett's Esophagus

No - but I've been wondering how badly damaged mine is????

 
Old 05-27-2007, 01:58 PM   #3
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slsmith1122 HB User
Re: Barrett's Esophagus

i had an egd 1 week ago. i received a letter in the mail. ? .
it stated i had "barrett's esophagus" . when i researched this, it is bad cells that turn into cancer. only cure is removal of esophagus.......i am only 39!
just needed to hear some postive stories.
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Old 05-27-2007, 03:56 PM   #4
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Re: Barrett's Esophagus

I am sorry to hear that you have been given this diagnosis but I think you should think positively because I read this:

>>Barrett's esophagus is a condition of the esophagus (swallowing tube) in which the normal white lining of the esophagus has been replaced by an abnormal red lining called specialized intestinal metaplasia. It occurs in about 10% of people who have chronic or longstanding gastroesophageal reflux disease (heartburn). Barrett's esophagus is a precancerous lining in which a type of esophageal cancer called adenocarcinoma can develop but the risk of cancer is low in most patients. At the present time, no one can predict which patients with Barrett's esophagus will develop cancer. It is, therefore, recommended that all patients who have Barrett's esophagus have their esophagus periodically checked to detect cancer when it is early and curable.<<

It isn't a given that you will develop cancer, I am sure your doctors will be doing all they can to make sure that from now on the acid is kept away from your esophagus and if it means pills and more pills then that is the way to go. I have been taking prescription meds for acid reflux for a long time and have decided to try other methods and see if I can make the changes with my diet etc. At what stage did they decide to do the endiscope and take a look, what sort of symptoms were you having...I think it would be helpful for others to know?

 
Old 05-27-2007, 05:29 PM   #5
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Re: Barrett's Esophagus

Slsmith,

I was diagnosed with Barrett's Esophagus in March and my doctor barely talked about it, instead focusing on my gallbladder issues. After researching it myself to say I was stressed from what I read would be a huge understatement. I fell into a deep depression for awhile but since I have learned a lot more info and I feel much better about it. It is not a death sentence like many sites make it sound. More of a wake up call. A lot depends on if you have dysplasia or not. Then it matters if you have low or high grade dysplasia. Many sites will say you have a 1% cumulative per year of developing esophageal cancer but most studies are showing it is more like 0.5%. I have read that women have a better chance of getting breast cancer. Still, I know how depressing it is to KNOW something like this is wrong with you. There is much more good news that I have read about. The current method of treatment is surveillence, more EGD's, anywhere from 1-3 years if no dysplasia, I think every few months if you do have dysplasia. A new treatment called BARRX which is an ablation of the BE cells of the espohageas is very promising. They will go in with a scope and burn away the BE cells. I have read two studies that showed 97% and 98% of people with BE will be CURED when the BE cells are replaced by normal esophagus tissue! I would post the links of all this info but I did this once before and the moderator removed them. Do an internet search for John Hopkins Barrett's esophagus and you will find a forum dedicated to BE with very knowledgeble people. Search for info describing the Barrx procedure itself. Why doesn't everyone with BE have the ablation? I'm not sure. I do not have dyspasia but after my next scope I am going to get on my doctor for some answers. I know I rambled quite a bit, hope some of this helps.

 
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