About done with this illness - Acid Reflux / GERD Message Board

Elisa123 · 12-30-2008, 01:06 PM

Just wanted to post because I dont know how much more of this disease I can handle. I have had gastroparesis for 5 years. 3 years ago I developed GERD, bile reflux, and a motility problem in my esophagus. My diet was not always the best, but now I watch very carefully what I eat.

I honestly just dont know what to do anymore. I am suffering beyond belief. There is something really wrong with my body. I have tried everything possible to help cure this illness but nothing has helped. I feel like I am going ot be sick and suffering with this until I pass out or die. That scares me. I would give anything to be normal. anything. I can't tell you how sick I have been with this illness. I am afraid to eat anything for the fear of the pain. I had bananas and some soymilk this morning and I am having more acid than if I ate at mcdonalds. I had the nissen fundo done last year and that did not help at all. I am completely at my witts end. Does anyone understand how much this takes your life away from you? I have absolutely no appetite, and I never feel hunger. That is from the gastroparesis. I havent felt hunger in about 6 years. Can u imagine never feeling hunger? I eat because I have too, food does not appetize me at all. Nexium and PPIs help not one bit. I have been everywhere, spent thousands of dollars on tests and naturopathic doctors. Tried every supplement known to man. I even purchased these 200 herbs from China that said it would heal gastroparesis. Well, it didnt do anything but waste my money. I never eat junk anymore. I eat bananas because they are smoothe on my inflamed throat. I don't know what to do and feel completely alone. Is there any hope that I will be normal? What is normal? What is it like to not suffer everyday? I don't know what that is like. Its been too long

-Lisa

inspectormoe · 12-30-2008, 04:10 PM

You are not alone with the no hunger thing. I had a fundo 5-1/2+yrs ago and most of the time I eat because I need to. Foods do taste good however but the desire to eat is not as it was pre-fundo. Have you been tested for gastric emptying? If food sits to long it can make you nauseous as well, as well as not being hungry. There are motility drugs that maybe of help. I see you are in Florida, have you tried Mayo Clinic for help? Ask your G.I. or surgeon who they would see if they needed treatment. I wish you all the best of outcomes!

jonstar · 12-30-2008, 06:14 PM

Have you tried meteclopramide?

If you have, and that hasnt worked, Bethanechol chloride (in Australia it has the brand name Urocarb) might be worth a try. Using this plus meteclopramide would attack the problem in 2 ways, and thus give superior releif

TEdds83 · 12-31-2008, 07:08 AM

Lisa, I just want to cry with you. I am sitting here feeling alone in this too. It has robbed me from having a full life at this point. And no one understands unless they are going through this too.

I am afraid to eat. If I am on Prilosec (which made me ill) I had anxiety, diarrhea and stabbing pains in gut I lost my appetite completely. I sat at Quiznos with my mom and my house guest and watched them eat as I nibbled at my little sandwich and had to toss it away. I felt weak. I just want to crawl in bed in my comfort zone and just stay there.

This bland diet is not fun, but I will do what it takes to feel better. Even getting up the courage to do my first endoscopy on Jan 9th will take everything in me. I am frightened just to do that. But I want to know. And then if they find something..hopefully not too serious then how will they treat it? And will it work.

I can't sit here and think this. The anxiety just makes all this worse.

You can talk to me anytime. I am going through perimenopause and I think everything is changing radically in me. The body chemistry just goes nuts. That would explain anxiety etc...

Hang in there!

jojokdz · 12-31-2008, 07:20 AM

Hello, I am new to this thread so when I saw the date you posted this, I thought maybe not to respond but I decided to do it anyways to see if you still check the board out? I am scheduled for a endosocopy Jan. 9th. which is about 10 days away. I am so scared. It is not my first one, but things have gotten much worse with my issues. I have Gerd/acid reflux, hiatal hernia and IBS. mY DOCTOR pretty much said I have a pretty messed up digestive system. I am 56 yrs.old. When I was in my teens, I had anorexia.. I blame most of my problems on having that. Since all my symtoms/problems started right after I suffered thru that. I have trouble swallowing food, pills, even liquids. Of course it comes and goes. But when it comes, it lasts longer and longer each time. And of course it had to flare up right thru my Christmas and New Years Holiday!!! It hurts to swallow, I feel miserable. I was told between the acid reflux/ maybe I had a motility problem. All I know its so hard NOT TO think the worse. My stomach hurts too from the IBS... SO I am suffering with one or the other each day. I feel your pains and hurts too as I am suffering too.

JOANN