UK Acid and its hopeless!
I was diagnosed with acid reflux three years ago. Tried two different PPI's and didnt tolerate them very well ...caused severe dizziness and nausea. The nature of my problems have changed. At first I just got the burning throat, hoarse voice, odd twinges of pain etc. For a long time now I have been getting very very breathless..its so bad I feel I havent the energy to talk or walk too far.
About 6 months ago and knowing of my acid reflux probs, my general doc referred me to the cardiac department. Had stress test ( negligible result), echo - fine, 24 hr ecg - fine. Now the cardiac team want me to have a thallium test and perhaps an angiogram.
No one is listening to me!! The shortness of breath is only bad when I am having a severe spell of acid reflux. I also have IBS. One of biggest symptoms is also burping...like 100 times a day sometimes!! I burped 18 times over one drink this morning! When I burp I feel a bit of relief with the breathing prob though it soon comes back. I wake up burping and go to sleep burping. I am just about to be tested for h pylori.
The breathing is weird. Its not like I am panting for breath for all to see ( as you imagine with angina and asthma)..its like I am grinding to a halt inside my chest! My body from the tummy up feels heavy and my breathing feels like an effort...like the normal mechanism of breathing is very dulled. It can make me very dizzy. Ialso get occasional odd flutters in the heart or thats the way it feels..sometimes a strange odd beat or three.
I am in the UK. Things run slow here re treatment for stuff/tests etc but I just had such an awful day today I honestly felt like throwing in the towel. I have two kids still at home and just walking down to the local shop is an effort...breathing wise..... I feel like I am suffocating/drowning...wading through mud. I darent lie down properly ( already have bed elevated) and am almost bolt upright to sleep. I aksed my doc if acid could be getting onto my lungs...she listened to them and said , no because there was no crackle to hear! A few weeks ago I ended up at casualty with the breathing thing and they did a chest x-ray and a blood gas test. Both fine. Sent me home with no idea of where the breathlessness was coming from. I havent seen the gastric team since my endoscopy 3 yrs ago.
What do you think I should do? Somethings gotta happen soon, its ruining my daily life and I am beginning to feel depressed.
Last edited by benzos; 10-28-2009 at 11:54 AM.