I am a 24 year old college student from California who was diagnosed with Acid Reflux disease and a medium sized Hiatal Hernia back in January of this year. I originally sought medical advice when I started waking up everyone morning with burning in my stomach. It was a raw feeling that was similar to the feeling of starvation. At first my doctor thought it was possibly an ulcer or bacterial infection. I was put on Prilosec 40mg which actually helped a lot. The burning subsided and I thought everything was going to be alright.
A few weeks later I started to get very nauseous in the morning and before bed. Some days this was relieved by drinking a glass of water and eating oatmeal as soon as I got up. Soon after that the nausea started occurring off and on throughout the day. Then the worst part of it occurred a few days later. I woke up one morning and had some cereal and decided to work out. As soon as I finished I became extremely weak and nauseated. I went to the bathroom and threw up more than I could ever remember. Then I started getting dizzy and felt like I had to urgently use the restroom. I had diarrhea for about 10 minutes then I started getting extreme cramps in my stomach. I honestly felt like I was going to pass out. This lasted off and on for about 90 minutes. The cramps started off at a pain level of 4/10 and progressed to straight 8/10 then it would subside and come back to 8/10 then slowly get better. After that morning, I went back to my general doctor and he sent me in for various blood tests and to a gastro specialist. The gastro doctor ordered me to get a full colonoscopy and endoscopy to check out what was going on inside. The funny thing is I didn’t get the cramping and nausea problem for several weeks and opted out of getting the test done right away.
I started eating really healthy and stayed away from foods that agitated my GERD. I was ok for about a month then once again it happened but this time worse than ever. This time my arms went numb, my legs went weak, I felt like the room was spinning, cramps were 9/10, diarrhea smelled potent, skin went pale, shivers and sweaty, and body aches. I went back and had the following tests full blood lab work including a check for inflammation in the gastro system, endoscopy, colonoscopy, ct-scan, and an ekg. The test came back POSITIVE for Hiatus Hernia, Z-line irregular, GERD, flattened mucosa, and irritation in my esophagus. The flattened mucosa was NEGATIVE for Celiac Disease and my gallbladder was healthy. I went on for awhile on prilosec but decided to take it less often and went down to one 40mg every other day. I felt fine for a while and the only problem I really had was pressure and pain in my hiatal hernia area. Then once again I experienced the same symptoms. It was pure agony. I went back once again and he decided I needed to switch to Nexium 40mg twice a day. I started doing yoga and taking the nexium which actually helped relive some of the pain I was getting in the hiatal hernia area. Then once again last night I got it again as worse as before. So I assuming it has nothing to do with acid since I am taking such a high dose of nexium. I am now considering getting another opinion or maybe even at the mayo clinic in Arizona. My doctor didn’t seem too concerned with the fact I spent 2 nights at the hospital and several nights very sick. ER couldn’t figure it out and the paramedics told me if the doctors didn’t understand it they wouldn’t either. I am hoping someone who reads my story can relate or has had similar problems that have been figured out. I know this was a long post but it was really only a shorten story of what’s been going on.
So once again my symptoms are...
Daily pressure and aches in the chest near the hiatal hernia that seem to hurt more when inhaling but not much while exhaling.
About once or twice a month I will be woken up feeling like I am going to pass out with extreme nausea, weakness, numbness in the arms and hands, followed by subtle cramps then extreme cramps that come and go through a period of 45 to 90 minutes usually. During this time I become cold, shaky, sweaty, and my blood pressure lowers. Afterwards, I start to feel better and am able to go back to sleep somewhat normally.
I take 40mg twice a day currently.
I take fish oil, mulit-vitamins, and calcium.
I eat a well balanced diet.
I do not smoke.
I rarely ever drink.
I was negative for gallstones and gallbladder disease.
I was negative for celiac and crohns disease.
Before this I was very healthy and had no other health issues.
My dad also has gerd and hh but does not have these symptoms.
Thanks to everyone who took the time to read my post.