Re: Down and spiralling out of control
NomadHunter: dear me, I cringe when I read your blog. I went through exactly the same thing. You sound like you have Larygopharyngeal Relfux.
It will help you understand what you have. Then get real serious about what your eating. I too don't exactly understand everything about what we have but I was forced to find what helped me. I woke up one mornng in the middle of a great life in July 2009 and I had severe pain in the back of my neck, head, cheeks, ears. No one could diagnose me. My Drs looked at me weird. They prescribed Flonase and said I had an allergy. I knew I didn't. I knew I had something serious but they wouldn't listen. I said to one Dr in excruitiating pain that the Flonase wasn't working. She replied in obvious disgust with me wasting her time, "...like I said keep taking the Flonase for the next two months, and if its not gone in two months than frankly there is not much more we can do for you.." And with that she said good bye and left the room. I was is horrific pain and kept going to work. Although I was in horrible pain (I should have been on a morphine drip it was so bad) I never missed a day of work. I did my work in horrific pain and had to talk and pretend like nothing was wrong. It affected my breathing, my voice was weak and I didn't sleep at night from the pain. I was ashamed. I think that I had something so horrible happening to me and Drs and my family did not think it was that bad. Finally I asked for an allergist 3 months into this horrible head pain and the allergist in 3 minutes diagnoised me with "silent acid reflux". The next 4 months I got a GI and ENT. They prescribed different PPIs, different strengths. Nothing worked for me. The stonger the PPIs were the more I felt side effects. But I plugged along...Nexium gave me a 30% improvement but a burn is a burn. And when you burn on top of burn over and over the throat is only 1 layer thick (as oppsed to the esophogus, which is made to take more acid). In Feb 2010 I got a severe case of pnuemonia (never had it before) caused by Nexium my Dr said. So he started me on the road to surgery. I wanted it as I didn't want to take meds. PPIs scare me. They are as bad as the aliment when taken forever. In May of 2010 I had a fundoplication and came out 10x worse. Soooo...I went through 4 months of searing to death, visit to the ER were they gave me psy and pain meds. Finally got new GI and ENT and to date they are supportative in my experiments on myself but they have never heard nor had a LPR patient before. So I've been doing my best to get myself better. I just do alot of research to understand it. I started with mega doses of probiotics Oct 2010 and it helped up to 60%. But a burn is a burn like I said earlier. Its still depressing. Two months ago along with probiotics I also stopped all meat (except for seafood) and what an improvement. If I'm careful with what I eat I have a 90% improvement. I still can't have wine, coffee, tomatoes in any form, pepper, bell peppers, mint, hot spices and the ususal. I have "atypical" LPR, which to me means nothing works for it. So diet has been the only option left for me and I have managed to get my self some what out of the depths of depair and pain. I can't even take pain meds (accept for tyenol) as they cause me severe LPR. Hope this helps you. Don't give up. We have a lot to live for. Our families need us. We have to be courageous as we are faced with a very serious anatomical problem that most Drs have never heard of or treated before. I suspect it is much more common than we think. I just think people are diagnosed with allergies or asthma. LPR is the beginning stages of GERD. Take care of yourself.
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