Hi I was diagnosed with GERDS 4 years ago, Now, I have this recurrent shortness of breath, an "lump in the throat" feeling which is worse when I'm hungry. Over the past year my doctor has increased my Nexium to 2 a day from 1), given me heart (every test known to man), pulmonary test, and sent me to a neurologist who gave me anxiety medication which has not helped. I have had mri of brain, cat-scan of throat and chest, and a endoscopy scope of my throat, esophagus, and stomach. Only things I have found is evidence of acid in my digestive track, which Nexium is seeming to control. I am frustrated now and need the anxiety meds cause the lump in the throat and the SOB are still present. Anyone have any ideas other than diet (because I have been eating healthy) and even with crackers and water all day nothing helps?
I would say it is GERD or even LPR. I too passed all my heart and pulmonary tests, even though I feel like my lower throat gets tight, with and without exercise. Perhaps Nexium is losing its effect? Perhaps a diet/lifestyle change would help (no fun, I know)? Find a good ENT and have them look at your vocal cords as well to see if there is inflammation from the acid. I saw a great ENT in Philly that really put my mind at ease with the whole breathing issue. Also, are you on Zoloft. I know Zoloft can definitely cause the globus sensation (I know from personal experience).
Nexium could be losing it's affect. I've been on it for 5 years now, and I feel like I did when they put me on it. The prescription is twice a day (which is max) now. My diet has changed for years now- no caffeine, spicy etc. And I am scheduled for a ENT doc to look at my vocal cords now. He looked 2 weeks ago through a camera inserted through nostril and said they look fine, but wants to put me to sleep to get a more thorough look.
My scope came out fine........ I have been suffering for months now while taking Nexium twice a day (maximum dosage) and staying away from caffeine, spicy, and fried foods . Have any of you ever conquered GERDS or have a method on how to control it? If so please share your story; I need some options that my doctors cant seem to find.
I recommend scheduling to see a Gastroenterologist. I also recommend that you request a manometry and 24 hr pH test to check for esophageal motility, how well your LES is working and whether or not you actually have acid coming up causing your problem. I've had 2 different versions of pH testing done over the years. The traditional pH test has a probe placed above your LES and possibly a second above your UES. It will measure liquid acid reflux and is helpful for official GERD diagnosis. There is a newer version of pH testing using a pH system by Restech. It has only one probe placed above your UES. It measures gaseous acid that makes it up past the vocal cords and is most useful in diagnosing LPR. The traditional proves are not sensitive enough to register the acid when it is in a gaseous state. If you haven't already had one, the GI doc will also probably recommend an upper endoscopy. That test may or may not be helpful. It can identify damage from acid reflux and they will check for other digestive issues that may be contributing to your problem, but not everyone with acid reflux will have damage. I also recommend that you request a modified barium swallow and esophagram. You eat and drink barium and they watch your chewing and digestive processes on video x-ray.
My personal experience with acid irritating my throat and lungs:
-The barium swallow showed I had acid coming up and irritating my lungs and throat with possible aspiration of the acid into my lungs.
-My upper GI test showed no damage
-My various pH tests have confirmed that I have extremely severe acid reflux, despite treatments
In my case, I worked with my ENT for my throat issues, my Pulmonologist for my breathing issue, my Gastroenterologist because the acid reflux is a digestive problem, my PCP who I saw in between when I couldn't get in to my specialists and I was flaring badly. I had to coordinate my care between all of these specialists in order to get the full care I needed once it was determined that the standard treatments weren't working. Still, while my symptoms are under some control right now, I know the doctors will have no further strategies for me to try next time I flare. All 4 of them have said I have the worst acid reflux they've ever seen. At least I'm "stable" for now.
I had my vocal cord scope and it was fine (no problems). Now I'm having indigestion daily and headaches, my doctor now is considering taking me off nexium. Has any one out there on long-term nexium use had any side effects like headaches or spasms?