eew,
Thanks for your reply. I guess I need to be finding out what my vitamin D and B12 levels are. I haves suffered with LPR for 6 years now. I live in western Colo. and many of the physicians are not familiar with it. I so well for awhile and then I have a flare up. In Jan. I has a egd and was found to have a Schlotski ring(sp). They dilated my esophagus and I felt better for about 4 months. I have had so many tests in the past. I had a bravo 6 years ago and passed that. Though I see that does not mean I do not have LPR. I know certain foods bother me coffee, chocolate etc. but sometimes everything bothers me. I will check out this vit d and b12 thing. I have wondered if a Nissen or Tiff procedures helps LPR? Do you know?
Hi eew. I'm new here and also live in Nor Cal. I just lost my post that I was writing for the last 1/2 hr. Oh, well. I read on a message board somewhere that having inadequate levels of HCL in the stomach can result in the LES malfunctioning. I've also read that HCL levels decline as we age. I just hit the big 5-0 a few months ago. Do you have any experience taking HCL for this condition? Based on your results, I'm going to increase my D3 intake, even though my reading was 58. I have nothing to lose and everything to gain. Thank you for telling your story and staying with this board so you may help others get well.
Hi Nordic1 and Lady Sue62: Received both of your messages. So sorry that you both are suffering. It's hard having such a difficult problem to fix. Hang in there. Experimentation with different things will help you both find what works best for you.
Nordic1, I use to think that the nissen fundo surgery made me horribly worse. But with time, I've been able to unravel what happened to me. I think the funo did help. And I think I have multiple problems that came together in a constellation. I avoided the sun for 40 years! I believe that was part of what happened to me. And I loved chocolate, wine and sweets. I say this in hindsight after alot of research and connecting the dots. Considering how serious my LPR condition was, I consider myself incredible lucky to have come out of it with some quality of life.
At the center of that is my instinct to keep researching and not believing everything my Drs told me. They basically told me after 2 1/2 years of searing to death that I had to learn to live with the horrible pain of LPR. There was nothing more they could do for me. And they refused to give me a referral to a UC system.
Thank goodness that we have the web now. I pieced together that Vitamin D, a pre-hormone, strengthens muscles. I thought that it might help me. I researched the best Vit D to take (D3 drops or liquid soft gel; absorbs better). And before I took D I requested a D lab test from my primary Dr. And I test, even after 1 year, every 3 months. At first I was going to get my D to 65 but now I'm going to experiment and get it to 80, which is the high end of normal. So a few days ago I started taking 6,000 IU again. And I'm considering pushing it to 8,000 IU for a week and then dropping it down to 6,000 IU after a week. I'm starting to realize it is not that easy to get D scores up where they belong. It takes a long time to "fill the Vit D tank".
And because I avoided the sun for 40 years I may have caused permanent damage.
As a side note, I started two types of blood pressure medicines in 2005 through 2010. One of those blood pressure medicines could have contributed to atrophy of the spinchters. It relaxed the muscle of the heart to lower my blood pressure. Over time, with other contributing factors, it may have been one of the things that contributed to my spinchters going limp.
On another note, I have read that populations that live at the equator have D scores of 80-120. And so do life guards. So it is level that we can at least gauge where we can get close to. Because I want to get rid of the whisps of vapors I have once and while, I want to experiment and push my D level to high normal of 80. Its worth a try in my opinion. Better than popping PPIs which I'm terrified of. If you have to take them than you have to. But for me I just couldn't take them knowing what they do to the acid pumps of the stomach. And it causes the gastrin hormone to go sky high, because the body senses there is not enough acid when you eat to digest the food, and it automatically pushes more gastrin hormone. Terrifying to say the least.
The acid of the stomach is extremely important for good health. LPR patients generally suffer from atrophy or "limp" esophogeal muscles. In particular our UES (Upper Esophogeal spinchter) is not stopping the small vapors in their tracks before they hit our tender single layer throat tissues. Under that single layer of throat tissue are the nerves that run up into your head and yes, down into your arms and legs. When LPR is severe one experiences severe pain from the burning throat up through the whole head and down through the extremities. And it is a living nightmare.
What makes it difficult is that many Drs have never seen it, nor recognize it, or its misdiagnosed for decades on a patient. Sometimes patients get the acid vapors into their lungs and they are diagnoised with asthma for years and they are put on asthma medicine and basically misdiagnosed. One has to see an ENT to get a clinical visual and scope down through the nose and vocal chords.
Sometimes the acid vapor hits up behind the nose or gets into the nasal cavities and one can be diagnosed as having allergies for years when in fact, valuable time is being wasted on nasal sterioids, that do nothing for the "allergy". This is what happened to me.
I went back and looked at my record and never had allergies till 2007. I went in and the primary Dr said I had allergies and gave me Flonase. I returned in July 2009 in horrific head/cheek/nose, ear/neck pain and I lost my voice. Again the Dr gave me Flonase. I dropped her and the next Dr gave me Flonase again! I begged her and pleaded with her that the Flonase wasn't working. I told her I was in horrible pain and she coldly said, "...like I said, keep taking the Flonase and if its not gone in two months than frankly there is nothing more we can do for you." Devasting. She walked out of the room. I was left with no where to turn. I told my sister and she said to get on the email and tell the Dr that since I have an allergy, then I want an allergy specialist. The allergy specialist diagnoised me with LPR within 3 minutes.
Sever LPR pain is exactly like a burn patient only the burn agent is always present and you are never offered pain pills because no one thinks of you as a burn patient. I really don't know how I survivied the 2 1/2 year ordeal. And I'm not out of the woods. I know I still have vapors up the throat. I can't help privately wondering how long a throat can take constant small vapors before the cells change.
To this day my newer set of Drs deny the first set of regional Dr's diagnoises of LPR. LPR diagnois just means that acid vapor is hitting the throat. It doesn't necessarily tell the patient why it is happening. Drs treat it by giving proton pump inhibitors, to shut down the acid pumps of the stomach. But the problem is sphincters that have lost their ability to close off the stomach.
The stomach acid is essential to good health. The acid of the stomach is 50% of our immune system as it kills off all the bacteria and viruses that enter and drop from our mouths, ears and nose. I was one of those 30% of patients on PPIs that got a severe case of pnuemonia from high doses of PPIs the first set of Drs put me on. And was put on high doses of antibiotics and kept on high doses of PPIs all at the same time. You guessed it, the pnuemonia didn't go away. And neither my GI or primary told me to stop the PPIs. They just stared at me and said, "your very very ill...you have to take good care of yourself..." but neither of them ever thought it was the PPIs causing the pneumonia. Lucky I read and researched. When I found out it was the PPIS causing it I was put in horrible position. The PPIs gave me a 10% improvement, which was not much, and I made a gut wrentching decision to take myself off PPIs. I immediately got better from the pnumonia. But because I had been on PPIs and the gastrin hormone was pumping out more and more acid to digest food, the burning was off the charts.
I can remember also when I told the first GI that my legs felt like lead weights about he got angry and asked me why I was telling him about it. He told me to go tell the primary about it. Later, he said under his breath that he realizes now that the "lead weight" feeling I had was from the PPIs.
Frankly the way I was treated by all the Drs was a eye opening experience. I felt the whole time that I was dealing with incompetence of the highest order. And the more I researched I realized that my gut feeling was right.
I hope someday, the efforts that are put into the heart muscle repair, can be focused on the esophogeal muscles. I hope Drs/researchers/scientists are studying how to help patients escape from the horrible suffering of acid going up their esophogus. What is so sad about LPR suffering is that you are labeled as having a mental condition or that you have stress you can't get a hold of. That is totally totally incorrect. If you have anxiety while experiencing LPR its most probably because acid hitting the throat sets up and automatic response in the throat that mimicks anxiety and radiates through the whole body and your thoughts, because acid is burning through the tissue and then on to the nerves of the throat.
Like I said you are basically a burn patient on the inside and the agent never stops burning you. And you are treated like you have a mental condition. I've read of alot of people that their families get angry with them. And I think its because Drs don't educate nor view LPR as a very serious condition that causes a very uncomfortable state of being for mild LPR and unbearable excruciating pain for severe cases.
LadySue62, I live in Northern CA as well. Your D level sounds very decent level. I have never tried HCL. Maybe someone on theis message board could speak to that.
It is very interesting that you have LPR with a very decent level of D. May I ask, what is your diet like previous to getting LPR.? Do you eat alot of tomatoe/sauces, coffee, sweets, alcohol, garlic? Foods that relax the spinchters contribute to the constellation of things that cause LPR. What time do you generally go to bed at night. Are you a night owl? Are you overweight like me?! (I have to lose weight to address the intra-adominal pressure issue. I want to see if it will also help my whisps of vapors by reducing the pressure inside the adminal cavity). Although I know babies, and thin people have LPR. I'm always looking for the common denominator. What causes it? Is it something we haven't thought about?
LadySue62, when you do get your B12 score would you share it? And Nordic1 when you do your D and B12 lab work would you share your scores. I'm always trying to connect the dots and figure out what are the things that are common to all of us that suffer with LPR and the different things that work for each of us. Keep writing and experimenting! Take care.
When my LPR symptoms first appeared in May, I was consuming large amounts of coffee, alcohol, chocolate, and spicy foods. I'd think nothing of going home after work and having a glass of red wine with a chocolate cookie. I think my LPR was the result of my diet. Otherwise, I eat mostly organic foods and very little wheat and dairy. I am slim and have been all my life. I have not been officially diagnosed with LPR, but I'm fairly certain that's what I have.
As time went on, my condition worsened and my sinuses were affected. I began to have post nasal drip and sleep apnea. My tongue was coated, swollen and burned at times. My throat was constantly red and inflamed but thankfully the burn was not severe. I had a persistent feeling of a lump in my throat. Eating and chewing gum actually made it feel better. The stress and anxiety of not knowing what was wrong with me certainly exacerbated the condition.
I went to an allergist even though I've never had allergies. I tested negative for asthma and was put on amoxicillin and a nasal steroid spray. After 3 weeks with no relief, I went back to my primary care physician and she put me on PPIs and a 5 day course of a different antibiotic, zithromax. My condition improved by 50% in just a couple of days. Maybe I had a subclinical infection. I don't know. At the time, I thought all I needed was another round of antibiotics and I'd be cured. Unfortunately, that didn't happen. I went to an ENT who confirmed the throat and vocal cord inflammation. He wanted me to double my dose of PPIs, but I intuitively felt that was not the right thing to do. I have not had an endoscopy or barium swallow test. I don't like the thought of either.
I have been caffeine and alcohol-free for 2 months and I've had only negligible amounts of tomatoes, chocolate or anything spicy. I go to bed around 10pm and (try to) sleep on a wedge pillow. And just to be certain it's not allergies, I bought a $300 air purifier for the bedroom. I dropped the PPI dose from 40 mg/day to 20 mg/day and haven't noticed a change. I'd like to think my LPR symptoms are lessening but occasionally I have a bad day. The sore, tight throat is always there. I cough up mucous from around the top of my windpipe. It's not a tickle cough but one that I consciously initiate.
I'm also seeing an acupuncturist who gave me Chinese herbs for my stomach which contain DGL, as well as digestive enzymes. I'm also taking a 30B probiotic 2x/day. I would rate my recovery at about 80-85%. I am of the belief that the body can heal itself when given proper nutrition and supplementation. The sooner I get off the PPIs, the better, but I'm afraid of my throat getting bad again, so I'm slowly weaning off them.
Eew, are you aware of the "whips of vapors" that you speak of? Personally, I don't notice anything but the sore throat/tongue and PND. If I knew vapors were present, I'd pop a Tums or something. I will ask my PCP for a D3 and B12 tests to see where I stand with those. There is info on the internet about LPR/GERD and HCL supplementation that I'm going to research further. I KNOW I can get well without medication and I'm going to find a solution! Take care of yourselves.
LadySue, I read your post just now and I think you are doing a great job. Yes, from what you have described you symptoms sound just like LPR. When my LPR was severe the acid vapor reached just below my back molars. So the ENT when he checks me is always checking the inside of my mouth to see how far the acid vapor is hitting.
What caught my attention is the you have sleep apnea. So do I. I was diagnosed after years of having it because I was falling asleep at a drop of the hat. I think that was in 2008 when I was diagnosed. I have a suspect that there may be a link with sleep apnea and the pressure that builds up in the breathing process to get air when the tongue falls in the back of the mouth. The suction is very great to get air and that may have something to do with the spinchters losing their ability. But because I got so much better with Vit D, I continue to feel that it is a constellation of things that come together. Perhaps weight, sleep apnea (thin people often also have sleep apnea) and foods that relax our spinchters and eating just before lying down.
But you are doing a real good job of managing your LPR. I would say have those scopes and exams. The only one that I had real serious reservations about was when they made me drink thick yukky stuff (that part doesn't trouble me) but the x-ray of the internal organs disturbed me deeply. They take xrays over and over as they watch in go down the esphogus. I know it was necessary but dispise taking x-rays. And there was no way to get around it. And then after the fudo surgery they insisted on doing another whole testing and I was so despondent and didn't want to do it. I'm totally scared of x-rays and what they do to our cells. But there was nothing I could do as they had to see if my fundo surgery was in place and had not come apart.
So anyway, your doing great with your progress. Its alot of hard work I know but at least we are salvaging quality of life for ourselves instead of popping PPIs. Best to you and everyone.
I read on a message board somewhere that having inadequate levels of HCL in the stomach can result in the LES malfunctioning. I've also read that HCL levels decline as we age. I just hit the big 5-0 a few months ago. Do you have any experience taking HCL for this condition?
HI Lady Sue,
After dithering for a few years, I decided to try the HCL/Betaine regime recommended by many naturopath doctors and nutritionists. (Interesting that it's almost always mainstream doctors who insist on diagnosing high acid and prescribing acid-blockers, while those opposed to prescription drugs suggest the possibility of low acid. Wonder why.)
I started small, following the suggested protocol: one tablet with a meal for a day or two, then two, then three, etc. If at any time you experience warmth or burning in the stomach area, you're advised to back off -- reduce the dose. I'm now on Day 6, and up to three capsules.
Results so far: less burping, abdominal bloating MUCH reduced, no nausea, sinuses much improved. This has happened while I was doing outside work that required continual bending over, day after day. Also, I have been very careless about my diet, eating too much sugar and the occasional chocolate bar and drinking a glass of wine most days. And coffee every day. When I start behaving myself, the HCL will get a fairer trial.
You probably can find web sites that list symptoms that may or may not be caused by low acid. On a couple, I had 12 of the 13 symptoms, right down to the peeling fingernails. Then again, 50 is still pretty young, and you may not have low acid at all.
Hi GG, Thanks for the info. It's amazing how well you're doing on the HCL/Betaine supplements. And you're eating all the things I've sworn off for the time being! Well, I do have an occasional scoop of raspberry sorbet. ;-) I'd greatly appreciate it if you'd keep us posted on your progress. I had a great weekend working out in the yard and I felt better being in the sunshine making natural D3. It sounds like you've had LPR for a few years (or more)? Do you have any symptoms still? Do you just avoid the standard triggers? I'm hoping that once my throat heals completely I can drink coffee and alcohol again -only this time in moderation. ~LS
Yikes, I wouldn't want to encourage anyone to start misbehaving as I have been! Normally I try to avoid sugary stuff and wheat -- especially wheat. I also take probiotics every day, plus krill oil and large doses of Vitamin D3 and B12. I rarely drink more than a glass of wine a day and certainly don't indulge every day.
I TRY to drink lots and lots of water every day. Perhaps the most helpful supplement for me, during a period when I was nauseous and tired every day, was mastic gum.
Yes, I've had GERD/LPR on and off for about 10 years. But I've also had sinus problems since childhood, and it's hard for me to tell which symptoms originate from the sinuses and which from the digestive system. Today I'm a bit hoarse, but is it from singing too much last night and enduring weeks of rainy, cold weather?
Some people believe that all of these respiratory ailments can be traced to GERD/LPR. I do not.
I'm hoping to increase the HCL/Betaine dose today. I'll keep you posted.
I hope you improve enough to enjoy some of the food and drink you love. Deprivation is fine for a while, but gets old, doesn't it?
Hi eww. I rcv'd my lab results. The B12 was > 1000 and the D3 dropped from 58 to 45 even though I've been taking 5,000 IU daily. It's in pill form, not even a softgel, so I guess it's not being assimilated very well. I'm thinking about switching to a liquid. On a lighter note, I celebrated a friend's birthday yesterday and had 2 glasses of wine with no ill effects. Again, this is a chronic condition that probably took years to develop so falling off the wagon once or twice on special occasions isn't going to make a difference in my opinion. Do you know when your symptoms first started and possibly a reason why? Enjoy your day! -LS
Hello! I have been dealing with LPR for the past few years. I had a really good run for an entire year where I was finally symptoms free. I had some sort of relapses. I am on Prilosec twice daily and it doesn't do much. My major issue is the swallowing difficulty.
I was wondering if you could let me know the name of the doc in NYC and how you know you had bile reflux.
Thanks!
Quote:
Originally Posted by Xhale12
Hey guys. I have had LPR for almost two years now. In that time it has made my life a living hell. I thought I would share my story of how I am now nearly cured, and soon to be TOTALLY cured.
First off.... I started my first LPR treatment 2 years ago with PPI's. I took Prilosec twice a day. It did nothing for me. A few months down the road, I felt it was a bit more effective, but I was still miserable. As a side note, I am only 20 years old.
I then went to a very famous LPR doc in NYC (most of you should know who Im talking about). She told me I have nerve damage AND reflux. I was prescribed a hefty dose of Gabapentin and Elavil. This did help for a bit, but it never relieved my symptoms to the point where I felt "good". I quit both meds when my dosage was finally up so high, I felt like a walking zombie.
I have also been on 10 or so different diets in the last year. To no avail. I was never overweight, and am in very good shape, so losing weight was not an option for me. The diets I followed were more to limit acidic food intake.
It was not until a few months ago that I realized one of the main causes of my symptoms. Anxiety/stress. My LPR was ALWAYS worst during times when I was anxious and or stressed out. I noticed this when I went on a week vacation, and barely had any symptoms. As soon as I came back home, my symptoms came back. I am sure many of you on here have noticed this as well. Instead of trying to treat the LPR, I decided they should try treating the anxiety....
I have been taking .5mg's of Xanax every night as well as carafate tablets throughout the day. 2 weeks later, I am nearly symptom FREE. I can't believe it. What I have is bile reflux. It is different than typical acid reflux. I am certain many of you have this form of reflux as well. Xanax and carafate help get it under control, and do it VERY quickly. The xanax also makes me sleep like a baby. I am not the only one who has found success with the regimen. After alot of conversations with my awesome doc, it appears MANY have been cured of LPR by doing this.You CAN be free of this disease! Had you told me my symptoms would be 90% better a month ago, I would have called you crazy. Feel free to ask me any questions!
"Some people believe that all of these respiratory ailments can be traced to GERD/LPR. I do not"
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There a lot of clinical studies that look at this factor. Put acid where it doesn't belong and it can cause all kinds of issues from asthma, burning mouth, dental decay, irritation of anything it touches. If you put acid on your hand you would cause a nasty burn, why would you think stomach acid doesn't have the same potential , it is every bit as strong as industrial acids?
Often people confuse stomach issues with reflux. You can have all kinds of stomach related problems and not have reflux, you can also have reflux and have no associated stomach issues. They do often go hand in hand due to lifestyle though. Symptoms are relieved to some degree by not eating and drinking the wrong foods, which generally by the way stimulate stomach acid. If your esophageal sphincter relaxes it allows acid up your throat/esophagus. This can occur for a variety of reasons, usually related again to lifestyle, age, stress, physiological.
Drugs that they use only help to control the amount of acid in your stomach, they can't fix the sphincter generally unless fundoplication surgery is used. It is a chronic condition for most. If you back off the lifestyle changes , quit taking the meds your going to re-introduce acid to your esophagus.
I have extremely high Vit D levels and Vit B levels all verified by clinical testing and it hasn't helped my reflux at all. I have no stomach issues, my diet is good, don't drink coffee or alcohol (rarely) yet my reflux is still an issue. My sphincter relaxes occasionally and allows acid up my esophagus, typically after a meal. Without an operation only drugs like PPI's can reduce the acid available to splash back up my esophagus. Hopefully medicine can come up with an answer, meantime I tried all the natural methods , aloe vera, DGL , apple cider vinegar etc.. nothing worked.
Reflux is complicated , different for all of us, hard to generalize about cures or ways to reduce the symptoms in my experience. The mainstream docs for the most part do know what works. For most it will be a chronic condition, especially those of us who post here, part of why were here, that's why "GERD" is a disease.
Hi xhale12,
How are you doing now with the xanax and carafate? Are you still taking both? Can I ask what your symptoms were before you started these meds? Also are you able to eat whatever you want now?
I hope you are doing well!
Kevinla,
You said you can vouch for this? Did it work for you as well?
I want to let people know that I read a study that shows that the anti-anxiety drug Xanax relaxes the upper esophageal sphincter. Definitely not advisable for someone who already suffers LPR. Xanax may help one feel better in the short term but it seems likely it would ultimately increase symptoms since LPR is understood to be caused by a relaxed or dysfunctional upper esophageal sphincter.
Also since I last wrote I read that magnesium relaxes muscles. I no longer take it.
EEW, did your health improve after you stopped taking the magnesium? From what I've read, magnesium helps prevent reflux. I also sleep much better since taking it and I believe that promotes healing in general.
I'm not sure if you will get this since your post was from 2010, but thought I'd try. Is the Xanax still working for you? I have that bile reflux too -it's awful. Any more suggested appreciated - thanks!
I'm not sure if you will get this since your post was from 2010, but thought I'd try. Is the Xanax still working for you? I have that bile reflux too -it's awful. Any more suggested appreciated - thanks!
I suspect I have bile reflux.
I have been taking metamucil capsules which absorbs the bile in the stomach and prevents it from refluxing. I have been taking it for about a month and a half.
I read it is best to take the capsules without water. However, I read it is not good to do this because the metamucil creates a paste and can cause constipation. I am taking 4 of them before I go to bed without water. Other times with water I take 5 capsules.
It seems to be having some effect. Not sure though.
Eew, I just read your post again; it's amazing what we are capable of in times of desperation. Well done.
One of my concerns regarding the mega dosages of Vit D3 is the effect it might have on our arteries. Have you heard of arterial plaque build-up caused by over-use of Calcium and Vit D supplements? If so, any thoughts?
Hi eww. I rcv'd my lab results. The B12 was > 1000 and the D3 dropped from 58 to 45 even though I've been taking 5,000 IU daily. It's in pill form, not even a softgel, so I guess it's not being assimilated very well. I'm thinking about switching to a liquid. On a lighter note, I celebrated a friend's birthday yesterday and had 2 glasses of wine with no ill effects. Again, this is a chronic condition that probably took years to develop so falling off the wagon once or twice on special occasions isn't going to make a difference in my opinion. Do you know when your symptoms first started and possibly a reason why? Enjoy your day! -LS
LadySue62, your doing good on your D. It may have dropped in in Oct 2012 because the sun in your latitutde does not produce the right kind of rays to produce D on your skin from about mid-April thru mid-Sept. That is why you drop a little as you enter the fall/winter. Sometimes I've read one needs to just take a bit more during winter when the sun doesn't produce D on the skin. I think that is why it fell from 58 to 45.
Maybe in the summer you can take a little less D and in the winter a little more. Yes, if you are taking pill form it's not the best. Soft gel is good and sublingual drops under the tongue are better.
Yes, isn't it nice to celebrate special occasions and have a bit of the things we like to eat. Good for you. I know how much it means to be able to do normal things and enjoy life.
I think my symptoms started in 2007 with a very stuffed up nose that I never had before. My primary Dr told me for two years to take Flonase (a steroid sprayed up the nose). What a joke...honestly I sometimes feel like its a crapshoot going to the Dr. She kept telling me it was an allergy. I was like a fawn lost in the woods believing and trusting everything these Drs told me. In 2009 the LPR came on severe and it took 6 months to get diagnosed and only because of my persistence. I had to drop Drs right and left and ask for specialist referrels while in horrific pain. LPR is an extremely common problem that is not readily recognized by primary Drs. Many people have chronic LPR and are being treated for different conditions.
As for as how I think it started...well, I've thought about it alot. I went to bed late, I loved chocolate and wine, I have sleep apnea, I'm overweight, I avoided the sun for 40 years thinking it was harmful (they told us that back in my younger days) and I like sweets. So I think it was a constellation of things that came together. And it started when I was 55 when I had a decline in estrogen. But I do think diet plays an important role in why it LPR happens.
What puzzles me is when I read that children have LPR. There is a component of LPR that must be universal, because young children and babies haven't spent alot of time eating chocolate and wine. So logic seems to point in the direction that it might be the quality of sunshine that we get and therefore the amount of D made on our skin.
When I think about being 60 and looking forward to the next 40 years to enjoy retirement and I get worried about what if LPR becomes severe again I think about all the young people who have LPR. I find it so sad that young people have this too, as its such a horrible thing to have corrosive acid vapor going up your throat.
Sorry I just noticed your posting tonight and wanted to reply to your post. I'm doing good but now that I'm not making D on my skin due to winter coming on, I noticed my D level dropped a bit and LPR I can tell would come back if I let the numbers slide down. So I have to stay on top of it.
Yes Mrs JBM, you are right on watching calcium levels while on D. I've read the same thing. I keep my calcium between 700-1000 while on D. I've read that one should test...I will try to get one done on calcium next time I test on lab work.
Someone asked me about magnesium. I was going to take it but backed off. I read that magnesium, while important, also is a vaso relaxer so I'm leary of taking it for that reason. We don't need our spinchters realaxing. Many of our common foods do that already which is sad. Like tomatoes sauce of any kind, chocolate, coffee, wine, etc. It's sad all the good stuff relaxes our spinchters and makes our spincter problem worse. We have to also watch the types of medications we ingest too. I've had a couple of surgeries in the last couple of years and when the IV's are pulled out I have to tell my Drs I can only take acetomitiphen for pain. All the other meds cause more acid vapor to rise. Thought I'd share that and save some of you from searing to death when you have need of pain medicine.
Re: LPR- Nearly Cured! READ THIS 
