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Old 12-04-2012, 04:29 PM   #41
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Smile Re: LPR- Nearly Cured! READ THIS

Wow... that's great news! I've had this symptom for the last year and a half. I have found a new Dr that listens to me and is allowing me to experiment. He suspects I may have gotten this after a bout with the swine flu. BTW how much carafate (mg) did you take and for how long? can I get it without a prescription? I'm also taking 25 mg of elavil once at night & 100 mg gabapentin twice a day... it seems to help but like you said when something promotes stress or anxiety I start getting that awful throat feeling. I aslo take Nexium 40mg once at night & 1 Ranitidine (ZANTAC) 300 mg in the morning. I even take ADVAIR 250 since my Dr feels I have a hypersensitive airway because I start coughing when I speak awhile. It's a real problem this LPR or LPN and I've noticed it is growing. I guess it's up to us to figure it out!

Thanks and hope for your reply soon

Japvette

 
Old 12-05-2012, 10:06 AM   #42
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Re: LPR- Nearly Cured! READ THIS

Quote:
Originally Posted by japvette View Post
Wow... that's great news! I've had this symptom for the last year and a half. I have found a new Dr that listens to me and is allowing me to experiment. He suspects I may have gotten this after a bout with the swine flu. BTW how much carafate (mg) did you take and for how long? can I get it without a prescription? I'm also taking 25 mg of elavil once at night & 100 mg gabapentin twice a day... it seems to help but like you said when something promotes stress or anxiety I start getting that awful throat feeling. I aslo take Nexium 40mg once at night & 1 Ranitidine (ZANTAC) 300 mg in the morning. I even take ADVAIR 250 since my Dr feels I have a hypersensitive airway because I start coughing when I speak awhile. It's a real problem this LPR or LPN and I've noticed it is growing. I guess it's up to us to figure it out!

Thanks and hope for your reply soon

Japvette
I am going to ask my doctor about taking elavil and or gabapentin.

Can you let us know how you do and when your doseage is increased?

 
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Old 12-09-2012, 02:39 PM   #43
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Sure will Kevinla... I'll keep you posted!

 
Old 12-18-2012, 04:37 PM   #44
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Re: LPR- Nearly Cured! READ THIS

Quote:
Originally Posted by Xhale12 View Post
Hey guys. I have had LPR for almost two years now. In that time it has made my life a living hell. I thought I would share my story of how I am now nearly cured, and soon to be TOTALLY cured.

First off.... I started my first LPR treatment 2 years ago with PPI's. I took Prilosec twice a day. It did nothing for me. A few months down the road, I felt it was a bit more effective, but I was still miserable. As a side note, I am only 20 years old.

I then went to a very famous LPR doc in NYC (most of you should know who Im talking about). She told me I have nerve damage AND reflux. I was prepcribed a hefty dose of Gabapentin and Elavil. This did help for a bit, but it never relieved my symptoms to the point where I felt "good". I quit both meds when my dosage was finally up so high, I felt like a walking zombie.

I have also been on 10 or so different diets in the last year. To no avail. I was never overweight, and am in very good shape, so losing weight was not an option for me. The diets I followed were more to limit acidic food intake.

It was not until a few months ago that I realized one of the main causes of my symptoms. Anxiety/stress. My LPR was ALWAYS worst during times when I was anxious and or stressed out. I noticed this when I went on a week vacation, and barely had any symptoms. As soon as I came back home, my symptoms came back. I am sure many of you on here have noticed this as well. Instead of trying to treat the LPR, I decided they should try treating the anxiety....

I have been taking .5mg's of Xanax every night as well as carafate tablets throughout the day. 2 weeks later, I am nearly symptom FREE. I can't believe it. What I have is bile reflux. It is different than typical acid reflux. I am certain many of you have this form of reflux as well. Xanax and carafate help get it under control, and do it VERY quickly. The xanax also makes me sleep like a baby. I am not the only one who has found success with the regimen. After alot of conversations with my awesome doc, it appears MANY have been cured of LPR by doing this.You CAN be free of this disease! Had you told me my symptoms would be 90% better a month ago, I would have called you crazy. Feel free to ask me any questions!
I think you're absolutely right about the stress and anxiety factor. I've been suffering with constant throat clearing for about six months now I've gone to an ENT and also had the scope down my throat and was told it will go away I was given medication for acid reflux but it didn't work.
I also noticed that the constant Throat clearing goes away almost completely when I am relaxed and not thinking about it. a few months ago I was on vacation and didn't clear my throat at all. I also notice if I am busy around the house with a project and my mind is occupied I don't think about the throat clearing. it doesn't bother me. But when I am really stressed I'm clear my throat 10 to 20 times a minute!
I just wish this thing would go away for good but unfortunately I'm afraid I'll have it for the rest of my life

 
Old 01-01-2013, 01:41 AM   #45
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Re: LPR- Nearly Cured! READ THIS

Just an update: I'm doing very well. I've added K1 and K2 to my daily routine. I don't think my ENT will believe his eyes when he sees my throat because it looks good to me! I don't even have wisps of vapor anymore since I started the K1 and K2.

To recap what I've done to get myself better since Aug 2011, I take D3 drops based on 1,000 IU for every 25 lbs of weight under the tongue; probiotics (15 strains) two capsules opened into water each day; B12 Methl' in drop(s) form under the tongue and the K1 and K2. And one krill softgel a day. Life is good and I can't believe I pulled myself out of the nightmare of LPR. I take no medications of any kind. I stopped baking soda gum. I don't need Tums anymore. The K1 and K2 were the last piece of the puzzle for me. The only things I avoid are tomatoes and raw onions still. Everything else I'm eating with no ill effects. Many of you will recall that I couldn't even drink water without burning to death. I'm still stunned and can't believe that I have managed to find the pieces to the LPR puzzle that work for me. I'm hoping so much you will all find what works for you. Keep sharing and experimenting!

 
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Old 01-01-2013, 07:42 AM   #46
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Re: LPR- Nearly Cured! READ THIS

What kind of K1 and K2 are you taking and what dosage?

 
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Old 01-09-2013, 01:30 PM   #47
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Re: LPR- Nearly Cured! READ THIS

Really? I had never heard this before! (about the Xanax)
Will definitely look into it. Could be the answer to a lot of questions I have had about my condition.

Last edited by Nole4ever; 01-09-2013 at 01:52 PM.

 
Old 02-23-2013, 01:32 PM   #48
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Re: LPR- Nearly Cured! READ THIS

Hi all. Ive just found this thread and was wondering if anyone can help.

Ive been suffering wjqt I thought was gerd or a nervous throat for afew months now. ..

Basically it is often tight, or a feeling that the throat is swollen. My voice is often hoarse, I get an odd slightly burning feeling in my throat. My sinuses often feel congested or if im getting a cold. Ive never had asthma sometimes I get a really hacking cough which is accompanied by a horrid wheeze.

This is starting to badly affect my life and im becoming desperate. Any thoughts or help would be so gratefully received.

Dave.

 
Old 02-26-2013, 05:04 PM   #49
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Re: LPR- Nearly Cured! READ THIS

I want to say thanks for all the input and info people post here.My problem is the hiatial hernia that formed because of acid reflux.That is causing me to fight for oxygen all night.Has anyone had any problems breathing with lpr?The doctor did prescribe prilosec and a antibiotic because he said I had a bacteria in my lungs causing infection.I took the antibiotics and prilosec,in the beginning it felt like it was working altho I was using an inhaler also.Now its back to struggling to breathe at night.There are several regiments I read here I will try.I really need help.Then lack of sleep is really getting to me.Like most I want relief but I would like to cure myself of this problem.This is pure hell.

 
Old 03-11-2013, 11:06 AM   #50
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Lightbulb Re: LPR- Nearly Cured! READ THIS

Quote:
Originally Posted by Xhale12 View Post
Hey guys. I have had LPR for almost two years now. In that time it has made my life a living hell. I thought I would share my story of how I am now nearly cured, and soon to be TOTALLY cured.

First off.... I started my first LPR treatment 2 years ago with PPI's. I took Prilosec twice a day. It did nothing for me. A few months down the road, I felt it was a bit more effective, but I was still miserable. As a side note, I am only 20 years old.

I then went to a very famous LPR doc in NYC (most of you should know who Im talking about). She told me I have nerve damage AND reflux. I was prescribed a hefty dose of Gabapentin and Elavil. This did help for a bit, but it never relieved my symptoms to the point where I felt "good". I quit both meds when my dosage was finally up so high, I felt like a walking zombie.

I have also been on 10 or so different diets in the last year. To no avail. I was never overweight, and am in very good shape, so losing weight was not an option for me. The diets I followed were more to limit acidic food intake.

It was not until a few months ago that I realized one of the main causes of my symptoms. Anxiety/stress. My LPR was ALWAYS worst during times when I was anxious and or stressed out. I noticed this when I went on a week vacation, and barely had any symptoms. As soon as I came back home, my symptoms came back. I am sure many of you on here have noticed this as well. Instead of trying to treat the LPR, I decided they should try treating the anxiety....

I have been taking .5mg's of Xanax every night as well as carafate tablets throughout the day. 2 weeks later, I am nearly symptom FREE. I can't believe it. What I have is bile reflux. It is different than typical acid reflux. I am certain many of you have this form of reflux as well. Xanax and carafate help get it under control, and do it VERY quickly. The xanax also makes me sleep like a baby. I am not the only one who has found success with the regimen. After alot of conversations with my awesome doc, it appears MANY have been cured of LPR by doing this.You CAN be free of this disease! Had you told me my symptoms would be 90% better a month ago, I would have called you crazy. Feel free to ask me any questions!
Hi,
I have had the same symptoms since September 2012, with swollen throat at the thyroid area with hoarseness, difficulty swallowing food, etc. I was recently diagnosed with LPR (silent reflux) and was given the generic Prilosec called "Omeprazole". I have taken it for a week and find it is not only constipating, it gives me a heavy feeling in my lower abdominal area. I am curious if stress is the reason for mine LPR as well as I have had and dealt with a daily headache/migraine since 5/12, prior to the throat issue, and have other constant stresses as well. I am an extremely healthy eater (people have said maybe it's because I eat too well. Ha.), weight has always been low, exercise regularly, don't smoke, don't drink, go to yoga and do meditation, etc. Stress just makes way more sense as to why I have this. Did the same doctor you were seeing originally make the association with stress or was it a new doctor you saw? I am going to suggest the xanax and carafate to my doctor. I was so grateful to see your entry! Best of luck to you and your health!

nanlau

 
Old 03-11-2013, 11:40 PM   #51
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Hi there, I was diagnosed with LPR about two years ago , have seen about 10 different specialists... And still not completely healed. I currently take aciphex twice daily, singular , vyvsnse for ADHD , and Claritin as needed... I recently started taking .5 Xanax as well to help relieve symptoms of LPR. I've been experiencing miserable symptoms for about 2 years now, and one of my doctors actually put me on elavil for a few months about a year ago which relieved my throat pain symptoms... I feel as tho the other symptoms I still experience have definitely gotten better since I started Xanax but maybe about 50%. Can you explain to me what your symptoms were Before you started taking the Xanax and what is carafate? Is it a prescription drug? The symptoms i still experience are excess mucous , post nasal drip, congestion, and excess saliva that has a strange taste and seems to cover the right side of my throat and mouth ( all exasperated during times of stress). Thanks for your post.

 
Old 03-12-2013, 03:30 PM   #52
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Re: LPR- Nearly Cured! READ THIS

Hi!
GReat thread!

I've been suffering from LPr for some years. I have trouble singing, feel my throat and vocal cords are all messed up. Some days everything is fine, don't understand this. Anyway, After reading your posts I might have found a link, I also have very low levels of D3.

Could you describe your symptoms? My last one is when I'm trying to eat or drink, there is some kind of muscle spasm in the throat, I make a noise and the food or drink comes out. When I take lansoprazol it gets a bit better. Gets worse with cakes.

TAke it easy with xanax, it can makes things much worse in the long run.

 
Old 03-18-2013, 07:59 AM   #53
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Re: LPR- Nearly Cured! READ THIS

I read that in order for vitamin D to be best absorbed you must take Vit K2 with it. Like, for every 1000 mg of vit D you need to take 100 mcg of vit k2. Anyone agree?

 
Old 03-27-2013, 08:48 AM   #54
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Re: LPR- Nearly Cured! READ THIS

Hello EEW,
Your posts are very encouraging and thanks for sharing your success story in recuperation from LPR.

I was diagnosed with GERD in 2008 and have been on one Aciphex 20 mg per day since then. The GERD symptoms were generally in control with occasional flare-ups when I had spicy food or too much food. Just recently, as of February, I suddenly felt something hitting my throat. Gradually, that worsened and I started feeling the classic symptoms of LPR, such as Globus, burning throat, something getting stuck in my stomach, hoarse voice etc. I went to the GI doc and an ENT, and both confirmed that it was LPR. They asked me to take two of Nexium 40 Mg per day (thus increasing the PPI from 20 to 80 mg per day) for a month and gave me a follow up in April. The globus feeling is gone, but I still cannot talk loudly, my throat hurts when I talk continuously in meetings, and throat burns occasionally (not continuously). I was not able to sleep well at night a few weeks back, but now am able to sleep well. My primary physical long diagnosed me with deficient Vit D and B12 and I have been taking the supplements for a few years now and I check the count once every 6 months to ensure that they are in range. My BMI is above normal, but I am not overweight by any means.

Since you seem to have seen the extremes of LPR symptoms, where do you think my LPR is on a scale of 10? Will a fundoplication surgery help? Do you have any other suggestions for me? I am VERY afraid of surgery and afraid of taking 80mg of PPI long term. Thanks for your time.

 
Old 03-29-2013, 11:59 AM   #55
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Hi. It appears to me that you may have other nasal symptoms that are not connected but may be worsened by acid reflux that is result of stress. As if Xanax helped what it could and the rest is from another source. See about sinuses or maybe a sinus infection, or even overgrowth of candida is possible, not sure about that.

I came to the same conclusion that my acid reflux symptoms are atypical and tried many things over the years that did not work..from pills to herbs, nothing stops it except sleeping and being on vacation. And just a few days ago I decided to ask my doctor to give me something for anxiety (a stress that moved from your head to your stomach -the way i see it) and then I read good results here. So I am almost 100% sure it will help me too. But for all suferers, I guess the real cure is to take care of whatever is causing that anxiety, whatever silent worry, uncertainty, people, jobs, relationships are making you anxious. And if it's just a bad habit than behavioral therapy, reading, yoga and pure will power to overcome those unhealthy behaviors. [


QUOTE=Apk2k5;5145512]Hi there, I was diagnosed with LPR about two years ago , have seen about 10 different specialists... And still not completely healed. I currently take aciphex twice daily, singular , vyvsnse for ADHD , and Claritin as needed... I recently started taking .5 Xanax as well to help relieve symptoms of LPR. I've been experiencing miserable symptoms for about 2 years now, and one of my doctors actually put me on elavil for a few months about a year ago which relieved my throat pain symptoms... I feel as tho the other symptoms I still experience have definitely gotten better since I started Xanax but maybe about 50%. Can you explain to me what your symptoms were Before you started taking the Xanax and what is carafate? Is it a prescription drug? The symptoms i still experience are excess mucous , post nasal drip, congestion, and excess saliva that has a strange taste and seems to cover the right side of my throat and mouth ( all exasperated during times of stress). Thanks for your post.[/QUOTE]

 
Old 04-02-2013, 10:28 PM   #56
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Re: LPR- Nearly Cured! READ THIS

Hey Eew I was wondering how things are going still. I have just started my changes to to acid reflux. What do you think of the vitamin D at this point. I have a nagging cough. I chewed for many years and quit just a few months back. Let me know. Thank you

 
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