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Old 07-14-2012, 06:55 PM   #1
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does anyone think the ppis made it worse

Hi all...would really like some input here...i have tried 3 different PPIs now,,,tecta first for 3-4 weeks then prevacid for just over 3 months and 1 month of that was a dbl dose and in between those two i tried dexilant which was brutal for me...so now my new doc told me to take the tecta again for 6 weeks,,,the reason i ask this question is...my problems all started because of
EXTREME stress...and after i took the tecta for the first few weeks it seemed to get better...i new nothing about ppis or h2s or anything at that time...i blindly took the meds the doc gave me to make the stomach pain stop. so after stopping the tecta it was ok for a bit i just had to randomly take a pepcid or a zantac every so often,,,i would say maybe every 3-4 days just one though.

but then my moms health went for a real crapper and the stomach pains came back with a vengeance and i went back to doc..told me to take prevacid twice a day for a month,,it sort of helped...but then my mom suddenly passed...roller coaster all over again...so i took the prevacid until 3 weeks ago..was trying to wean myself off of it cuz it just made me feel really gross,, and fatigued and just generally blah...so now being back ontecta just once a day it seemed ok for the first 2 weeks but this third week has been not good,,,i havent changed the food i have beeneating,,,y schedule has been hectic with work and kids and stuff,,,so i havent been eating at regular times...and the past 2 days i have been feeling that really full feeling and also like something stuck in my throat,,not really reflux like no burning or anything in my throat but a bit in my stomach/chest area off and on...and i really feel like i have to burp constantly but i cant..i have tried everything from gas x to water to almonds to walking to pepcid.
is this because of the tecta..or is it a flare up...or what...i just really need some answers or it anyone else has had thishappen if they can tell me why or how they fixed it..my stomach feels liek its growling/gurgling my chest feels very full and pressure in it,,,,my heart is good had 5 ecg/ekg and chest xray done as well as ultrasound of abdomen...
new doc want me to get barium soon..

sohere is another question..does anyone feel like they were kinda messed up worse because of the ppis...like i do...i only say this because in the intervals that i have not taken them and only randomly taken the pepcid or zantac i felt better....i did start to get the rebound when i was weaning off the prevacid,,,and after the 6 weeks of tecta not sure what i am going to do as the first doc said i had gastritis and no one can tell me how long that takes to get better,,,
really need some input...
thanks ahead of time
Spunky

 
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Old 07-15-2012, 03:49 AM   #2
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Re: does anyone think the ppis made it worse

I do think the PPI's made me worse. I had some slight burning in my abdomen and some discomfort. The Dr. put me on Nexium. After 5 weeks, I felt a little worse. He changed into to a higher dose of Dexilant. After a week, I became very ill and had abdominal pain. He changed it to prevacid, and I ended up in the hospital for 5 days. They couldn't find anything other than some gastritis. I left the hospital on Pepsid. I've been on 80 mg. a day of pepsid since. I'm still not feeling much better. I'm in the same situation. I don't know what to take now.

 
Old 07-15-2012, 05:06 AM   #3
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Re: does anyone think the ppis made it worse

I am completly off meds. Drink the aweful Apple Cider Vinegar three times a day, using only Braggs with mother, Bio K from your local health store, and digest spectrum. Though I still have some more recovery, as of today, I pray it's longer, I am 80% better.

 
Old 07-15-2012, 06:48 PM   #4
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Re: does anyone think the ppis made it worse

thats great to hear seal...what is bio k and digest spectrum...are they digestive enzymes?
I feel for you vachilly...i am just so tired of this...feel good for a day or two then ehammo right back to square one so to speak...i really want to get off the ppis...did you have barium or scope or anything like that...do they know what is wrong...i feel like the docs just guess sometimes...
i wish you both well
thanks
Spunky

 
Old 07-15-2012, 06:53 PM   #5
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Re: does anyone think the ppis made it worse

hey vachilly...i forgot to tell you to do a search on propolis,,,it is supposed to be excellent for anything stomach related especially gastritis and ulcers...i have some but i have not started taking it yet..waiting to finish the last 3 weeks of tecta first...but please google it..its all natural
let me know what you think
spunky

 
Old 07-16-2012, 01:19 PM   #6
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Re: does anyone think the ppis made it worse

Quote:
Originally Posted by Spunkyhunny View Post
thats great to hear seal...what is bio k and digest spectrum...are they digestive enzymes?
I feel for you vachilly...i am just so tired of this...feel good for a day or two then ehammo right back to square one so to speak...i really want to get off the ppis...did you have barium or scope or anything like that...do they know what is wrong...i feel like the docs just guess sometimes...
i wish you both well
thanks
Spunky
I have typical tests (EGD and impedance). The problem is that the GI doc had me on 60mgs of Dexilant twice a day when the tests were done. So, we don't really know what my condition was prior to PPI's except that I felt worse every day I took the PPI. Ended up in the ER twice in extreme pain. Now I guess I'm still fighting rebound. Don't know much yet. Still testing. Getting ready to be tested for gastro paresis and HIDA test.

 
Old 07-23-2012, 10:26 AM   #7
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Re: does anyone think the ppis made it worse

Definately made me worse. Without a single doubt.

 
Old 07-23-2012, 10:56 AM   #8
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Re: does anyone think the ppis made it worse

So sorry to hear of your mom's sudden passing. Losing a parent is always tough, particularly when it happens so suddenly.

As far as the PPI's, I feel they are a mixed blessing of sorts. I responded to a PPI very well (Aciphex) when I was first diagnosed with GERD five years ago or so. When I decided to wean myself off the PPI, it caused terrible acid rebound for at least three months (acid rebound is a very real thing).

I bumped along for about two years not taking PPI's and managing with changes in diet and H2 blockers (Zantac mostly), but then experienced another fairly intense episode of heartburn about two months ago or so. I tried to go back to the Aciphex, and also tried Prilosec and Nexium, and none worked too well. So I decided to wean myself off again, renew my diet modification efforts and get back to the Zantac, which is what I am still doing with decent success.

I have found that GERD for me is like many other disorders for people. It seems to come and go, and I go through better and worse phases.

I think PPI's are probably a Godsend for many people, but as I said, I have mixed feelings. I think docs should tell us more about side effects. It is not an easy cure and not a cure at all actually.

Best to you for a speedy recovery.

Rose

 
Old 07-23-2012, 09:30 PM   #9
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Re: does anyone think the ppis made it worse

Hi Rose..
Thank you for your kind words...i had never heard of GERD or anything like that before my moms illness..i know that all the sudden and intense stress caused my tummy troubles...even doc said it was cuz of that which i guess in turn caused the gastritis and heartburn..i just never had heartburn like this before...ever...sure occasionally if i drank to much iced tea or ate something super spicy(rarely) but not like this..it comes out of the blue and can last for a couple of days even though i am still taking the tecta...just dont know what to do or to change....i have changed so much already..and cant gain any weight back...i feel the same...the docs should at least tell you what they are prescribing and waht it may or may not do...especially about the rebound...

that is what i am most concerned about,..since i still get heartburn ON the ppis whats it gonna be like when i am off...scary i think...i just dont want my esophagus to get damaged or to cause other probs after coming off ppis...
any advice you have would be well received.
Spunky

 
Old 07-24-2012, 11:49 AM   #10
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Re: does anyone think the ppis made it worse

This is a disorder that seems to come and go for me. I have experienced heartburn on PPI's too. I think how much heartburn we experience has to do with a lot of factors:

1) How much acid your stomach is secreting (like in your case due to stress).

2) Certain foods coax the stomach to produce more acid, i.e., coffee, chocolate, red wine, bell peppers, etc., etc., etc. Everyone has different triggers.

3) Some people have a damaged LES or one that relaxes or opens too much allowing the acid to back up into the esophagus.

4) Proton pumps in the stomach wall secrete the acid. How much acid we secrete is also related to how many pumps are active on a certain day. That is why PPI's work. They prevent the pumps from secreting acid.

I don't think we can control the LES very much with the exception that certain medications and substances tend to relax it, i.e., peppermint, valium, etc. We can try to control stress (except in your case right after your mother died, nobody can control a reaction to something so sudden and devastating), but we can try to control other sources of minor, chronic stress if we can. We can also control what we eat, and eat things that do not force the stomach to produce too much acid.

Sometimes, there is no rhyme or reason to why these episodes of GERD come and go for me. I am going through a fairly decent phase right now, but I was a mess two months ago. I was experiencing heartburn almost 24 hours a day.

I have tried to not stress about it and take it one day at a time. I take good care of myself, and if I have a bad day, I turn over a new leaf the next and start all over with the diet and the remedies. I do know one does not feel awful every day forever, but it seems to be recurring. Certain things I have had to give up completely and know I cannot have again.

It's a trial and error process for most of us. But don't give up. Give your body a chance to heal and yourself the opportunity to grieve your mom's passing.

Rose

Last edited by rosebloom; 07-24-2012 at 11:49 AM.

 
Old 07-25-2012, 10:28 PM   #11
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Re: does anyone think the ppis made it worse

Wow i thought i was only one that ppis made systems worst. Hope the gi specialest beleives me n doesn t ask me take them. Lifes been miserable since takig it few days cant swallow. Been few weeks waiting for zantac n time to heal burnt espphagitis

 
Old 07-26-2012, 06:14 AM   #12
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Re: does anyone think the ppis made it worse

Rose I am much like you , good and bad days. Some it is my fault, I get feeling better and think I can wander outside the diet rules and back it comes. I am best when I stick to my diet and don't think about it much. Certainly focusing on it adds stress and gets the stomach going.
The PPI's , some , seem to work for me but I haven't tried to get off them yet. Hoping in a few weeks to attempt that. Been there and done that once after being on them for gastritis when I took them for 8 weeks, it went fairly well. This time with the reflux I am not so sure it will be as easy. I have had lots of side effects with PPI's , some work some don't , it is a trial and error process. I much prefer H2's which have few side effects for me if any.
Gerd/LPR like any disease is tough on all of us, emotionally and physically like any disease. People adapt , many have much worse crosses to bear, just have to get on with it don't we. I do find it difficult that it seems a moving target most times, what works today doesn't always work tomorrow. Tough to figure at times how to fix this. My specialists has no answers , try this drug , if this one doesn't work we will try another.

 
Old 07-28-2012, 12:31 PM   #13
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Re: does anyone think the ppis made it worse

hi all...
In a weird way I am glad to hear that it is not only me that thinks PPIs made it worse...i dont think the doc should have given me these at all...i only have ten days left for this last round of tecta...i am still getting reflux/heartburn off and on...and i really dont understand why..yes i still have stress...but am trying to control it...very hard thing to do..so now i am worried about the rebound once i get off of these pills...has anyone tried calcium citrate in powdered form i read it is supposed to work for tightening the les and help to prevent reflux...as well as some other supplements i am reseaarching at the moment....i would like to know what you all have done that has worked for rebound..other than the usual diet.

Thanks
Spunky

 
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