It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Acid Reflux / GERD Message Board
Post New Thread   Reply Reply
LinkBack Thread Tools
Old 08-28-2012, 08:09 AM   #16
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

When sphincter isnt workig properly I don't believe it miraculously starts to. That is why people like us have gerd chronic acid reflux. As for the lung and shortness of breath i had that but bought an adjustable bed and sleep highly elevated. After that, it went away. ****** way to sleep but it's better than feeling you can't take a normal breath.

 
Reply With Quote
Old 08-28-2012, 04:49 PM   #17
Senior Member
(male)
 
Join Date: Apr 2012
Location: Port Huron , Michigan
Posts: 259
Johnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB User
Re: Taking a giant leap of faith going off of PPI's!

Gonzoe I sleep elevated , it helps somewhat but is no cure. Sure doesn't hurt though, I'm used to it now.

If the sphincter can suddenly quit working due to inflammation can't it start working again once it heals? Not sure but another question for the doctor next visit.

 
Reply With Quote
Sponsors Lightbulb
   
Old 08-28-2012, 07:10 PM   #18
Junior Member
(female)
 
Join Date: May 2012
Location: Upstate NY
Posts: 29
georgi17 HB Usergeorgi17 HB User
Re: Taking a giant leap of faith going off of PPI's!

Thanks Jonah, I'm trying to keep in tune and figure out when it's coming on..but it's been hard to tell. I also sleep elevated, but I'm not sure that does anything. In fact last night I threw the wedge pillow on the floor and slept with two pillows. I am so sick of waking up with constant neck and shoulder pain from that pilllow!
I have Nexium samples, not sure if I should try them instead of the omeprazole...I hate meds (side effects) and and it takes a lot for me to start something new, but I'm willing to try to be able to breathe normal again. My mother takes dexilant for GERD, may try one of those.
Let us know what your doctor says tomorrow about the sphincter healing. I'm putting a call into mine too. I have to get this under control.
Wishing us all healing thoughts!

 
Reply With Quote
Old 08-28-2012, 09:02 PM   #19
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

I hear ya messes up my neck and head ache but after I took nexium n stopped abruptly I'm sitting up sleeping now lol this is even worst, Im having bad day today do much damage but scared of ppi

 
Reply With Quote
Old 08-29-2012, 03:17 PM   #20
Senior Member
(female)
 
Join Date: Oct 2004
Posts: 185
ksc1968 HB Userksc1968 HB User
Re: Taking a giant leap of faith going off of PPI's!

Hi Mountain Reader,
I wanted to give you some of my experience stepping off of the ppi Prevacid. I was taking 30 mg twice a day, similar to your dexilant....its actually the same drug without the dual delivery system.
I have tried, unsuccessfully three times to get off of prevacid. I finally have had some pretty good success and wanted to share it with you.
My prevacid I buy is a capsule. It is full of little white granules. I was instruced by my gastro as follows: (Any other way has been unsuccessfull)
Open one of the capsules and play pharmacist, separating the granules on a paper plate or very flat surface, separate them into halves and then separate the halves into quarters. Its not exact science, you just eyeball the amount of granules in the four piles until they look equal. I then put a whole pill and the 3/4 granules in little disposable plastic containers I buy in bulk from Smart and final. So when your done you should have two weeks supply of a 1 3/4 of prevacid (I find it easier to sit down and do all 14 days at once)
Then after two weeks you cut cut the granules in half, so your taking 1 1/2 pills for the next 2 weeks. Then down to 1 1/4 pills for two weeks...etc until your down to 1/4 of a pill. The next dose NEEEDS to be 1/8 of a pill for two weeks, then go to nothing.
My gastro said I have to pay attention to my body.....if within a few days I feel any burning sensations then I am to go to the 1/8 granules every other day for a week, then to every 2 days for a week, then to every 3 days for a week, until I am able to go 7 days between medicine. By then there should be no rebound.
I have tried cold turkey...failed... I have tried to do the Pepcid in place of the prevacid...Failed...tried to cut out one pill....failed..... THe rebound acid is
100x worse than why I even got on the pills in the first place.
Well I am now down to 3/4 capsule from two and have had a fantastic transition until the last few days. Its nothing major, but when I lay down to go to bed, I get a burning sensation, so I have been taking Gaviscon Advance from the UK. I ordered it online and it is soooooo incredible! So worth the added shipping.
It is not the same as the gaviscon here. That has aluminum and magnesium and verry little sodium alginaate( foaming ingredient). The UK stuff has two ingredients...1000mg of sodium alginate and potassium. It makes a thick raft barrier, that blows doors off of the USA gaviscon liquid.
I wish you luck in this process.....It is in your best interest if you dont have to take these drugs.
They are way overprescribed, and I have become deficient in Iron, Magnesium, B12 and D, all from these pills. I started getting laryngospasms (airway closes and your cant breathe) from magnesium deficiencies,,,,its now listed on Dexilants website as a new warning .....scary stuff.
I cant absorb the vitamins and minerals due to depletion of stomach acid. So they are not as safe as they tell us they are.
Keep me posted on how your doing, and please order that gaviscon advance from a online pharmacy in the UK, I get it from chemist direct. Worth every penny. I order 4 bottles at a time to stock up, since it takes 2-3 weeks to ship.
Hugs
Kelly

 
Reply With Quote
Old 08-30-2012, 10:12 AM   #21
Senior Member
(male)
 
Join Date: Apr 2012
Location: Port Huron , Michigan
Posts: 259
Johnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB User
Re: Taking a giant leap of faith going off of PPI's!

Heh Gonzoe have you asked your doctor about surgery? I see your in Canada as am I , wondering what the odds of getting this surgery done without going thru an extremely long period of screwing around with PPI's hoping for a fix. After reading several sources on the net it seems that PPI's don't work about 80% of the time for those with LPR and not the typical GERD symptoms. Becoming more and more convinced that extending the period on PPI's may just do more harm than good , aggravate other areas of the body such as your lungs etc. without much benefit. The answer seems to be surgery for a small group of us that have reflux that involved the lungs etc..
Wondering how common this surgery is done in Canada. Will be having that discussion with my gastro doc. I would much rather get it over with if that is the fix. My sphincter doesn't seem to be working and PPI's aren't likely to fix it just help minimize the symptoms.

Last edited by Johnah; 08-30-2012 at 10:29 AM.

 
Reply With Quote
Old 08-30-2012, 03:42 PM   #22
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

Quote:
Originally Posted by Johnah View Post
Heh Gonzoe have you asked your doctor about surgery? I see your in Canada as am I , wondering what the odds of getting this surgery done without going thru an extremely long period of screwing around with PPI's hoping for a fix. After reading several sources on the net it seems that PPI's don't work about 80% of the time for those with LPR and not the typical GERD symptoms. Becoming more and more convinced that extending the period on PPI's may just do more harm than good , aggravate other areas of the body such as your lungs etc. without much benefit. The answer seems to be surgery for a small group of us that have reflux that involved the lungs etc..
Wondering how common this surgery is done in Canada. Will be having that discussion with my gastro doc. I would much rather get it over with if that is the fix. My sphincter doesn't seem to be working and PPI's aren't likely to fix it just help minimize the symptoms.
My doc said surgery isn't normal etc and hasn't heard of people doing it and gve me nexium and life went downhill from that lol from cramps here n there to chronic pain n stricture

 
Reply With Quote
Old 08-30-2012, 03:45 PM   #23
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

I have same problem ever since I had excessive coughin my sphincter doesn't work so basically if I lie down it leaks so I just sleep elevated n don't over eat n jump around. But these docs gave me ppi bc say can cause cancer if don't take it, with ppi I Chet chronic heartburn after eat n over prdouction of acid n instead of sleepin 6 inch raised I sleep upright. Thy don't understand that I was way better off without

 
Reply With Quote
Old 08-31-2012, 07:22 AM   #24
Senior Member
(male)
 
Join Date: Apr 2012
Location: Port Huron , Michigan
Posts: 259
Johnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB User
Re: Taking a giant leap of faith going off of PPI's!

Are you going to a specialist or your family doc Gonzoe?

I am going back to see the specialist on Oct 2nd and intend to press him on what needs to happen to progress to surgery. Seems to me the odds of the sphincter suddenly starting to work again after a few months of PPI's is slim to none.

I find I'm doing all the right things, have been on PPI's since March and sure they help to relieve the symptoms but it isn't going away. Seems the only difference is less acid to come up as a result of the meds so it reduces the irritation but changes little as to the function of the sphincter. Certainly don't want to screw my lungs up longer term by just taking the meds and not getting at the root cause.

 
Reply With Quote
Old 08-31-2012, 07:45 AM   #25
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

Diet changes to more alkanine and elevated bed helped me. Ya I been to specialest recently and he didnt even do an endoscopy and gave me prescription for dexilant and said that will heal me. Waste of time waited so long for a specialest. He said he's been on ppi since he was 15, although he's a young doc that still is a long time. My doc is the one gave me nexium that ruined my life at this point he thinks people with relflux should be on ppi. I'm startin to think these docs don't believe in doing research never heard of rebound and side affects of ppi. Maybe bc I'm in vancouver and doctors aren't good here

 
Reply With Quote
Old 08-31-2012, 11:03 AM   #26
Senior Member
(male)
 
Join Date: Apr 2012
Location: Port Huron , Michigan
Posts: 259
Johnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB User
Re: Taking a giant leap of faith going off of PPI's!

Odd Gonzoe, I was put on PPI's by my family doc in March , had an endoscopy done end of May and started with the specialist then. Had a number of tests done in the hospital in between including a Catscan , EKG's, blood tests etc. as I felt pretty sick and they were trying to rule out what it could be. Looking back I think the timelines and workups they did on me were pretty good.

My family doc and the specialist I find to be excellent docs, trouble is that like many health issues there isn't as clear a solution for this as we might like there to be. I live in a smaller town of about 350,000 though not like Vancouver, maybe that helps.

 
Reply With Quote
Old 08-31-2012, 12:16 PM   #27
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

Wow that is for sure a better doc even after the night I burnt my esophagus severely from the nexium I still havent gone to do an endoscopy. And this first time have difficulty swallowing solids and tight swallowing. I'm starting to think maybe I shouldn't have bought the generic one because it was cheaper.

 
Reply With Quote
Old 08-31-2012, 12:33 PM   #28
Senior Member
(male)
 
Join Date: Apr 2012
Location: Port Huron , Michigan
Posts: 259
Johnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB UserJohnah HB User
Re: Taking a giant leap of faith going off of PPI's!

I know on the internet there are some phony versions of Nexium, hopefully you didn't buy one of those. My understanding is some of those on the net have no medication in them at all , that might explain why it didn't work for you.

Last edited by Johnah; 09-06-2012 at 05:36 AM.

 
Reply With Quote
Old 08-31-2012, 12:39 PM   #29
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

Pharmisave reccommended because I dont have cover. It's a pink tablet, and suppose be much cheaper. I just checked today online and it's suppose be capsule. So I'm wondering if the generic one caused me to have immediate rebound maybe

 
Reply With Quote
Old 08-31-2012, 12:41 PM   #30
Senior Member
(male)
 
Join Date: Jul 2012
Location: Canada
Posts: 172
Gonzoe HB UserGonzoe HB User
Re: Taking a giant leap of faith going off of PPI's!

It worked for few hours and afterwards just exploded and I over produced acid craziest pain n damage ever experienced

 
Reply With Quote
Reply Reply




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Aciphex
Nexium
Omeprazole
Pepcid
Prevacid
  Prilosec
Protonix
Ranitidine
Reglan
Zantac




TOP THANKED CONTRIBUTORS



janewhite1 (107), solofelix (96), MountainReader (72), kacyc (61), rosebloom (34), Johnah (20), eew (17), JanaJ (16), Seeking Sunrise (16), Stretch1one (15)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (904), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 07:21 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!