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Old 09-18-2012, 02:05 PM   #46
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Re: Taking a giant leap of faith going off of PPI's!

Notice you are coming off Dexilant MountainReader. I have been taking it and finding it works pretty well for me. Odd thing is it is the same drug as Prevacid but I can't get Prevacid to work very well. Head scratcher for me as when you read about it the underlying drug is the same but Dexilent has time release technology. I tried taking 30mg of Prevacid twice a day which should be equivalent to 60mg of Dexilant but it just didn't do as much for my reflux.

Sounds like your not getting much rebound after coming off, good for you hope that stays that way.

 
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Old 09-18-2012, 09:51 PM   #47
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Re: Taking a giant leap of faith going off of PPI's!

Johnah,

Prevacid was a bit perplexing to me too. I took it twice a day for many years (before it became OTC). I actually found that Prevacid in the Solutab version worked better for me than the capsule Prevacid. Not sure why, but since it helped, I went with it.

Prior to my reflux surgery, I'd been on all of the PPI's on the market, most of them high dosages twice a day. Even the Dexilant didn't relieve all of my symptoms, but it worked the best of the bunch. Most people who have Nissen Fundoplications end up going off of all PPI's. Due to the severity of my reflux in gaseous form and other digestive issues I started developing, I didn't question the fact that all three of my reflux specialists (ENT, Pulmonologist and GI doc) and my PCP all agreed I should stay on the Dexilant. In fact, I'm trying going off of the PPI's on my own, with the reluctance of my PCP, because I'm choosing to see if I can improve my body's absorption of certain nutrients as part of my TMJ treatment. My orthodontist really thinks that getting off PPI's will help.

Keeping my fingers crossed.
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Old 09-18-2012, 10:22 PM   #48
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Re: Taking a giant leap of faith going off of PPI's!

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Originally Posted by Neurofuzzy View Post
Hello Mountain Reader
Can you please describe how the ResTech pH probe works? Do you wear it for 24 hours and it sits only in your throat above the UES? Does it make it difficult to eat? I'm suffering from strange throat pains with swallowing, and foreign body sensations after swallowing a bone. I was on Prevacid for two weeks in case LPR was hindering with the healing, but it's been a month and I still have residual symptoms. Would like to confirm/ deny LPR with the ResTech pH probe. Flexible laryngoscopy doesn't show any physical changes consistent with LPR. Thank you for your input.
The ResTech pH prove was actually similar to a regular 24 hour pH probe, but the technology differs some. The probe is put up your nose and basically dangles in your mouth above your UES. It has a blinking light on the tip so if you open your mouth in a darkened room you can see it hanging there. The light helps guide the doctor in the placement. The other end of the tube the probe is attached to comes out your nose, wraps around the back of the ear and has a clip that attaches to your shirt. There is a small pager size computer that wirelessly registers the readings from the probe. You have to keep the computer with you all the time. (With the regular 24 hr pH test, you are attached to the computer and it is much larger.) If you learn about the ResTech technology, it is the only probe on the market that actually measures the acid in its gaseous form. Some people get Dual 24 hour pH probes done with one probe above the UES and one above the LES. With those probes, you only register the liquid acid coming up. They aren't as sensitive as the Restech probes. The formulas they use for the ResTech readings are also a bit different.

As for swallowing, I don't remember feeling anything with the Restech probe. It really doesn't come down that far. With the typical 24 hr pH probes, the tube goes down the throat and you can feel a bit of a tug on the tube when you swallow. It wasn't that bad though.

I wish you well in finding your answer.
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Old 09-18-2012, 11:20 PM   #49
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Re: Taking a giant leap of faith going off of PPI's!

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Originally Posted by Gonzoe View Post
what use is a ph test? I thought acid leakage was due to lower sphincter not closing. so it doesn't matter if you have low or high acid? it will get to your throat if you lie down?
I think that in general for mild acid reflux a pH probe might not be as necessary.

Not all reflux type symptoms are actually reflux. For more severe or chronic issues, it often becomes necessary to confirm the reflux. The pH probe tests also measure the severity and duration of each refluxing incident. It also measures when the incidents are occuring. That combined with a log you keep allows them to see if you are having any specific triggers and when you are at your worst.

In general, most people with acid reflux issues don't have the throat problems. When they do, it is often hard to get an official diagnosis since the symptoms can be indicative of other issues as well.

Personally, I found all three of my pH tests extremely useful. I actually have rarely had any "typical" acid reflux symptoms. All of the symptoms I did have were also symptoms that could be attributed to other health issues. My first pH test confirmed that, yes, I did actually have acid reflux issues. The Manometry I had at the same time confirmed that my LES was weakened. The pH tests showed progression in severity over several years despite major lifestyle changes and medical treatments. I had almost continuous symptoms during the time I was awake, but I was sleeping without much difficulty. The tests showed major refluxing around the 2-4 am time that wasn't waking me. It also showed I had severe refluxing throughout the day when I didn't even realize it too.

My primary reflux symptoms were: a chronic cough; difficulty breathing; throat irritation; and PND. I later realized my sinus problems were reflux triggered as well. I had confirmed allergy, sinus and asthma problems already. With asthma (allergy and environmentally triggered) and reflux presenting with a chronic cough and/or breathing difficulties I wasn't always sure what the trigger was to know where I should focus upping my treatments. The same was true for my other symptoms since the throat, sinus and PND issues could either be the allergies or the acid reflux or both. Testing helped me with my diagnosis at the time.

I really think the need for testing really depends on the individual and their needs.
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Old 09-20-2012, 11:44 PM   #50
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Re: Taking a giant leap of faith going off of PPI's!

Yes I have breath and sinus problems now for 3 months almost. But it's gotten better I heard or read rebound lasts 3 months at least.

 
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Old 09-27-2012, 08:19 PM   #51
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Re: Taking a giant leap of faith going off of PPI's!

Thank you Mountain Reader for explaining the Restech pH probe. I swallowed what I presumed was a bone on august 17, 2012 and since then I've continued with either pain when swallowing or a foreign body sensation after swallowing on the left side. I've never had hoarsness, PND, or chronic cough before. I was placed on prevacid 30 mg once a day prophylactically in case I had some reflux that was hindering the healing process from the trauma of swallowing the bone. But, I had terrible side effects including abdominal cramps, loose stools, and rectal bleeding; so I stopped after two weeks of prevacid. It didn't really help with my throat issues while I was on it. I just wanted to either rule in or out LPR before trying any other PPI's or H2 blockers since I had such a bad reaction to the prevacid. How are you doing off the Dexilant?

 
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Old 09-28-2012, 11:00 AM   #52
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Re: Taking a giant leap of faith going off of PPI's!

Anxious to hear how your weaning-off went. I, too, am on Dexilant. It worked well for over a year, but suddenly I have serious bloating and adominal pain -- along with increased acid throat that never went away. Today, there was even a period of chills. The constant full feeling is rather frightening. Have you any idea of what could be going on? Am still taking the Dexilant.

 
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Old 09-28-2012, 08:34 PM   #53
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Re: Taking a giant leap of faith going off of PPI's!

Hi. As requested, this is just an update on my progress so far.

I'm about 6 weeks out since going off of the Dexilant. The first 5 weeks went very well. I'm not totally sure how my reflux is actually doing this week. I know that sounds kind of strange. My acid reflux symptoms have been a bit perplexing for years though because they can be the same as some of my other health issues, mostly it presents the same as my asthma.

Last week, we had a ton of wildfire smoke from a neighboring state that settled in over our valley pretty thickly. The air quality was horrible all week and it really flared my asthma and I developed a nasty asthma cough. The bad air blew out and the air quality improved this Monday, but my cough has continued. I'm trying to figure out if it is residual from the bad asthma flare or if all the coughing I did flared up my acid reflux. I know from when my cough was really chronic that the cough squeezes my core and my stomach which can push the acid up to irritate my lungs worse. Right now, I'm taking H2 blockers and treating my asthma hoping to get the cough back under control. I'm hoping that it will do the trick. I was feeling pretty good coming off of the Dexilant until then.

My Orthodontist (Holistic Dentist) recommend some Zypan (Hydrochloric Acid digestive supplement) to take with my meals to see if it helps break down my food a bit better to help my digestion adjust since I was on the PPI's for so many years. I'll see if it helps as well.

I'll keep you posted as I try to determine if my current issues are acid reflux related or not.
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Last edited by MountainReader; 09-28-2012 at 08:42 PM.

 
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Old 09-29-2012, 08:31 AM   #54
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Re: Taking a giant leap of faith going off of PPI's!

Sincere thanks. It seems your choice to discontinue the PPIs is a wise one. Good luck.
Do you know of any cases in which someone began to have constant bloating/fullness while on PPIs for Gerd? Again, thanks.

 
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Old 09-30-2012, 08:00 PM   #55
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Re: Taking a giant leap of faith going off of PPI's!

Please let us know if the zypan works for you. I'm just wondering if the extra HCl is beneficial for your symptoms or simply exaggerates the acid reflux problems. Thanks, and I hope your cough is improving.

 
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Old 10-03-2012, 03:11 AM   #56
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Re: Taking a giant leap of faith going off of PPI's!

Hi MountainReader,

I am a GERD sufferer myself and combatting 'acid rebound' effects of Nexium (Nexpro is the brand I am given). At 7 weeks of taking and trying to come off of it, it is bad enough. Chest pains, stomach cramps, breathlessness, nausea, headaches....it is all 'back'. What I try to do is to keep acid at bay so that it cannot do any damage like most of you are trying to do too. For this, I use a rice diet. It has a way of settling the acid when combined with enough vegetables but you must be careful to cook the rice very well with MORE water than usual. It becomes very soft when cooked well. I don't know whether it'll help you but it has certainly helped me out so it might be worth a try. Also, I add coconut milk to my vegetables. Coconut milk has a neutralising effect and where I come from (sri lanka), they use it even to combat poison ingestion. This might help with your acid, I am almost certain BUT, DO NOT TAKE IT EARLY MORNING ON AN EMPTY STOMACH. It is too 'cooling' which might aggrevate your asthma. During meals in fair quantities of vegetables (as curry I mean) it has a good neurtralising effect...soothing. Also, give Popped Rice (Rice pops) a shot. It absorbs acid in the stomach. I take it to control acid before going to sleep and refrain from drinking water afterwards so that the acid will get absorbed and not the water.

I hope you come out of the PPIs succesfully and soon. Let us know how you are doing. You made the right decision to stop them. They do no good from all this research I've been reading and particularly in the long term.

 
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